The Experience of Caregivers Following a Moderate to Severe Traumatic Brain Injury Requiring ICU Admission.
The Experience of Caregivers Following a Moderate to Severe Traumatic Brain Injury Requiring ICU Admission.
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DOI：
10.1097/htr.0000000000000525
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发表时间：
2020
影响因子：
2.4
通讯作者：
Adeoye, Opeolu
中科院分区：
文献类型：
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作者：
Kreitzer, Natalie;Bakas, Tamilyn;Kurowski, Brad;Lindsell, Christopher J.;Ferioli, Simona;Foreman, Brandon;Ngwenya, Laura B.;Thomas, Stephanie;Keegan, Sara;Adeoye, Opeolu
关键词：
中度和重度创伤性脑损伤（TBI）的幸存者需要大量护理，其中大部分最终由朋友和家人提供。我们试图描述非正式照顾者未满足的需求。在损伤后72小时、1个月、3个月和6个月，对中度和重度TBI幸存者的非正式护理人员进行了定性、半结构化访谈。一级创伤中心的重症监护病房。非正式照顾者是计划为病人提供照顾的朋友或家人。患者年龄在18岁或以上，患有中度至重度TBI，预计不会因损伤而立即死亡。共有18对患者-护理者夫妇参与了研究。在6个月的时间里，对护理人员进行了53次访谈并进行了分析。定性分析确定了三个主题：照顾者负担、照顾者健康相关生活质量和照顾者对信息和支持的需求。这项研究提供了关于非正式照顾者在他们的朋友或家人在中度至重度脑外伤后6个月内的经历的新信息。促进护理的干预措施可能是改善创伤性脑损伤后以患者为中心的结果的一个重要机会。
Survivors of moderate and severe traumatic brain injury (TBI) require substantial care, much of which is ultimately provided by friends and family. We sought to describe the unmet needs of informal caregivers. Qualitative, semistructured interviews with informal caregivers of moderate and severe TBI survivors were conducted 72 hours, 1 month, 3 months, and 6 months after injury. Intensive care unit of a level 1 trauma center. Informal caregivers were friends or family who planned to provide care for the patient. Patients were 18 years or older with a moderate to severe TBI, and not expected to imminently die of their injuries. Eighteen patient-caregiver dyads were enrolled. Fifty-three interviews with caregivers were completed and analyzed over the course of 6 months. Three themes were identified in the qualitative analysis: caregiver burden, caregiver health-related quality of life, and caregiver needs for information and support. This study provides new information about the experience of informal caregivers during the 6 months after their friend or family member survived a moderate to severe TBI. Interventions to promote caregiving may be a substantial opportunity to improve patient-centered outcomes following TBI.