Differences in pain knowledge and perception of the pain experience between outpatients with cancer and their family caregivers.

Differences in pain knowledge and perception of the pain experience between outpatients with cancer and their family caregivers.
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门诊癌症患者及其家庭护理人员在疼痛知识和疼痛体验感知上的差异。

DOI：
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发表时间：
1995
期刊：
Oncology Nursing Forum
影响因子：
1.9
通讯作者：
M. Wallhagen
M. Wallhagen
中科院分区：
医学4区
文献类型：
--
作者：
Yeager Ka;C. Miaskowski;S. Dibble;M. Wallhagen

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目的/目标 旨在确定在将经历癌症相关疼痛的门诊患者与其家庭护理人员进行比较时，对疼痛的了解和对疼痛体验的感知是否存在差异。 设计 定量的、描述性的。 设置 十六个肿瘤门诊机构是肿瘤护理研究网络的一部分。 样品 八十六名患有癌症相关疼痛的门诊患者及其家庭护理人员。 方法 在门诊招募患者及其家庭护理人员，并要求他们填写人口统计调查问卷和疼痛体验量表。患者还被要求填写卡诺夫斯基表现量表。 主要研究变量 患者及其家庭护理人员对疼痛的了解以及他们对疼痛经历的感知。 研究结果 患者及其家庭护理人员之间的知识得分没有发现显着差异。研究发现，家庭护理人员对疼痛体验的看法存在显着差异，家庭护理人员比患者对疼痛体验的看法更加消极。家庭护理人员报告称，(a) 与患者报告相比，患者的疼痛程度明显更高；(b) 患者因疼痛而承受的痛苦显着大于患者自己报告的程度；(c) 家庭护理人员因患者疼痛而承受的痛苦显着大于患者向其护理人员报告的痛苦。 结论 门诊癌症患者及其家庭护理人员对疼痛和疼痛管理的了解有限，并且对疼痛体验的感知不同。 对护理实践的影响 门诊患者及其家庭护理人员需要接受更好的教育，了解如何控制与癌症相关的疼痛。此外，为了减少患者和护理人员的痛苦，肿瘤科护士需要促进患者和家庭护理人员之间关于疼痛经历的沟通。
PURPOSE/OBJECTIVES To determine if knowledge about pain and the perception of the pain experience differ when comparing outpatients experiencing cancer-related pain with their family caregivers. DESIGN Quantitative, descriptive. SETTING Sixteen oncology outpatient settings that are part of the Oncology Nursing Research Network. SAMPLE Eighty-six outpatients with cancer-related pain and their family caregivers. METHODS Patients and their family caregivers were recruited in the outpatient setting and asked to complete a demographic questionnaire and the Pain Experience Scale. The patients also were asked to complete the Karnofsky Performance Scale. MAIN RESEARCH VARIABLES Patients' and their family caregivers' knowledge about pain and their perception of the pain experience. FINDINGS No significant differences in knowledge scores were found between the patients and their family caregivers. A significant difference in the perception of the pain experience was found, with the family caregivers viewing the experience more negatively than the patients did. Family caregivers reported that (a) patients had significantly higher levels of pain compared to patient reports, (b) patients experienced significantly greater distress from their pain than the patients reported for themselves, and (c) family caregivers experienced significantly greater distress from the patients' pain than the patients reported for their caregiver. CONCLUSIONS Outpatients with cancer and their family caregivers possess limited knowledge about pain and pain management and perceive the pain experience differently. IMPLICATIONS FOR NURSING PRACTICE Outpatients and their family caregivers need to be better educated about how to manage cancer-related pain. In addition, to reduce patient and caregiver distress, oncology nurses need to facilitate communication between patients and family caregivers about the pain experience.