Sensory experiences of children with autism spectrum disorder: in their own words.

Sensory experiences of children with autism spectrum disorder: in their own words.
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DOI:
10.1177/1362361314520756
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发表时间:
2015-04
期刊:
Autism : the international journal of research and practice
影响因子:
--
通讯作者:
Baranek GT
Baranek GT
中科院分区:
其他
文献类型:
--
作者:
Kirby AV;Dickie VA;Baranek GT

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研究中很少纳入自闭症谱系障碍 (ASD) 儿童的第一人称视角,但他们的声音可能有助于更清楚地阐明他们的需求。这项研究涉及对患有自闭症谱系障碍 (ASD) 的儿童(n=12,年龄 4-13 岁)进行现象学访谈,以深入了解他们的感官体验。本文讨论了两个研究目标:确定采访患有自闭症谱系障碍的儿童的可行性,并探索他们在定性采访过程中如何分享有关其感官体验的信息。通过所描述的方法,年仅四岁且具有广泛自闭症严重程度评分的儿童成功参与了访谈。孩子们分享关于他们的感官体验的信息的方式包括正常化、讲故事和描述反应的主题。访谈还揭示了背景的重要性和儿童经历的多感官本质。这些发现为理解自闭症儿童的感官体验提供了策略,对实践和未来的研究具有影响。
First-person perspectives of children with autism spectrum disorder (ASD) are rarely included in research, yet their voices may help more clearly illuminate their needs. This study involved phenomenological interviews with children with ASD (n=12, ages 4-13) used to gain insights about their sensory experiences. This article addresses two study aims: determining the feasibility of interviewing children with ASD and exploring how they share information about their sensory experiences during the qualitative interview process. With the described methods, children as young as four and across a broad range of autism severity scores successfully participated in the interviews. The manner with which children shared information about their sensory experiences included themes of normalizing, storytelling, and describing responses. The interviews also revealed the importance of context and the multisensory nature of children's experiences. These findings contribute strategies for understanding the sensory experiences of children with ASD with implications for practice and future research.