Factors associated with caregiver adherence to mobile health interstage home monitoring in infants with single ventricle or biventricular shunt-dependent heart disease.
Factors associated with caregiver adherence to mobile health interstage home monitoring in infants with single ventricle or biventricular shunt-dependent heart disease.
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DOI：
10.1017/s1047951122001822
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发表时间：
2022-06-08
影响因子：
1
通讯作者：
Zyblewski, Sinai C.
中科院分区：
文献类型：
--
作者：
Jackson, Sydney R.;Chowdhury, Shahryar M.;Woodard, Frances K.;Zyblewski, Sinai C.
移动医疗技术是一种新兴的工具，用于对患有单心室心脏病或双心室分流依赖性缺陷的婴儿进行期间家庭监测。本研究旨在描述对移动健康监测的依从性，并确定与坚持移动健康监测相关的因素和结果。这是一项回顾性的单机构研究，研究对象是2016年2月至2020年10月期间在基于健康的移动阶段间家庭监测计划中随访的婴儿。该分析包括105名婴儿，并根据遵守移动健康监测的频率进行分组。在研究队列中，16例（15.2%）患者的依从性为0%，25例（23.8%）患者的依从性<50%，64例（61.0%）患者的依从性为50%以下。粘附组婴儿中男性（p = 0.02）、白人（p < 0.01）、非西班牙裔或非拉丁裔（p < 0.01）、母亲英语流利（p < 0.01）、已婚婚姻状况（p < 0.01）和产前诊断有胎儿心脏病（p = 0.03）的比例较高。依附组的婴儿也有较高比例的非医疗补助基本保险（p < 0.01）和居住在家庭收入中位数较高的社区（p < 0.04）。依从性的频率与期间死亡率、计划外心脏再干预或再入院无关。移动健康阶段间家庭监测对照顾者压力的影响，以及使用多语言、低识字率、负担得起的移动健康阶段间家庭监测选项值得进一步调查。
Mobile health technology is an emerging tool in interstage home monitoring for infants with single ventricle heart disease or biventricular shunt-dependent defects. This study sought to describe adherence to mobile health monitoring and identify factors and outcomes associated with adherence to mobile health monitoring. This was a retrospective, single-institution study of infants who were followed in a mobile health-based interstage home monitoring programme between February 2016 and October 2020. The analysis included 105 infants and subjects were grouped by frequency of adherence to mobile health monitoring. Within the study cohort, 16 (15.2%) had 0% adherence, 25 (23.8%) had <50% adherence, and 64 (61.0%) had >50% adherence. The adherent groups had a higher percentage of infants who were male (p = 0.02), white race (p < 0.01), non-Hispanic or non-Latinx ethnicity (p < 0.01) and had mothers with primary English fluency (p < 0.01), married marital status (p < 0.01), and a prenatal diagnosis of faetal cardiac disease (p = 0.03). Adherent groups also had a higher percentage of infants with non-Medicaid primary insurance (p < 0.01) and residence in a neighbourhood with a higher median household income (p < 0.04). Frequency of adherence was not associated with interstage mortality, unplanned cardiac reinterventions, or hospital readmissions. Impact of mobile health interstage home monitoring on caregiver stress as well as use of multi-language, low literacy, affordable mobile health options for interstage home monitoring warrant further investigation.