Children caring for their ill parents with HIV/AIDS

Children caring for their ill parents with HIV/AIDS
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DOI:
10.1080/17450120600659077
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发表时间:
2006-01-01
影响因子:
1.1
通讯作者:
Muchaneta, Lorraine
Muchaneta, Lorraine
中科院分区:
其他
文献类型:
--
作者:
Bauman, Laurie J.;Foster, Geoff;Muchaneta, Lorraine

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因艾滋病毒/艾滋病而成为孤儿的儿童不仅要承受父母死亡的创伤,还要承受与患病和垂死的父母生活在一起并经常照顾他们的压力。我们采访了50位来自津巴布韦穆尔西亚和美国纽约的艾滋病毒/艾滋病母亲,以及每一位8-16岁的孩子,了解孩子提供的个人辅助护理;其他家庭责任;孩子每天花在家务上的时间;父母/孩子的心理健康。儿童提供大量的个人照料;负责做饭、打扫卫生、购物和其他家务;有些儿童是父母的知己。所提供的护理量与产妇残疾有关,而与儿童年龄、性别或其他成年人/兄弟姐妹的存在无关。据报告,儿童比母亲完成更多的任务。几乎一半的纽约和80%的穆里埃儿童说,他们有太多的责任,大多数人报告减少课后和同伴活动。孩子和父母都认为孩子更有能力,因为他们的责任。纽约和慕尼黑的儿童抑郁率很高,但慕尼黑的儿童非常脆弱;三分之二的儿童抑郁评分在临床显著范围内。然而,儿童抑郁症与抑郁症无关。仍然需要进行研究,以更好地了解儿童照料者的作用。
Children orphaned by HIV/AIDS experience not only the trauma of a parent's death, but the stress of living with and often caring for an ill and dying parent. We interviewed 50 mothers ill from HIV/AIDS in both Mutare, Zimbabwe and New York, USA, and one child of each aged 8-16 about personal assistive care the child provided; other household responsibilities; hours/day children spent on chores; and parental/child mental health. Children provided substantial amounts of personal care; took responsibility for cooking, cleaning, shopping and other household tasks; and some were their parents' confidants. The amount of care provided was related to maternal disability, not child age, gender, or presence of other adults/siblings. Children reported performing more tasks than their mothers reported. Almost half of New York and 80% of Mutare children said they had too much responsibility, and most reported reduced after-school and peer activities. Both children and parents felt children were more capable because of their responsibilities. Depression rates in New York and Mutare children were high but Mutare children were extremely vulnerable; two-thirds had depression scores in the clinically significant range. However, child caregiving was unrelated to depression. Research to better understand the role of child caregivers is still needed.