Information-seeking behavior of minority breast cancer patients: An exploratory study
Information-seeking behavior of minority breast cancer patients: An exploratory study
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DOI：
10.1080/10810730500263638
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发表时间：
2005-01-01
影响因子：
4.4
通讯作者：
Davis, SW
中科院分区：
文献类型：
--
作者：
Talosig-Garcia, M;Davis, SW
在美国，很少有针对少数族裔乳腺癌患者进行基于人群的研究来了解他们的信息寻求行为。我们检查了少数族裔乳腺癌患者使用的资源以及西班牙裔和非裔美国乳腺癌患者使用互联网的程度。从加州萨克拉门托癌症监测项目中随机抽取了 388 名西班牙裔和非裔美国乳腺癌女性患者。研究并调整了各种调查和数据收集工具，创建了包含 44 项的调查问卷。受试者被要求参加电话采访。在 388 例病例中，74% (n = 287) 同意参加我们的研究。百分之六十三 (n = 181) 在诊断时收到了癌症相关信息； 58% 的受访者表示，医疗保健专业人员向他们提供了此信息。只有 17% 的受访者曾经使用过互联网。癌症信息的三大来源是书籍、小册子和小册子 (98%)；医生或其他卫生专业人员（97%）；配偶或伴侣、家庭成员、朋友或所有这些 (62%)。没有受访者表示访问过国家癌症研究所的 cancer.gov 网站。少数乳腺癌患者使用互联网获取癌症相关信息的比例非常低。
Few population-based studies have been conducted with minority breast cancer patients in the United States to understand their information-seeking behaviors. We examined the resources minority breast cancer patients used and the extent to which the Internet was being utilized by Hispanic and African American breast cancer patients. A random sample of 388 Hispanic and African American breast cancer female patients was obtained from the Sacramento Cancer Surveillance Program in California. Various survey and data collection tools were researched and adapted to create the 44-item questionnaire. Subjects were asked to participate in a telephone interview. Of the 388 cases, 74% (n = 287) consented to participate in our study. Sixty-three percent (n = 181) received cancer-related information at the time of their diagnosis; 58% reported that a health care professional provided them with this information. Only 17% of study respondents had ever used the Internet. The top 3 sources for cancer information were books, brochures, and pamphlets (98%); doctor or other health professionals (97%); and spouse or partner, family members, friends, or all of these (62%). None of the respondents indicated accessing the National Cancer Institute's cancer.gov website. Minority breast cancer patients were using the Internet for cancer-related information at a very low rate.