Achieving a balanced life in the face of chronic illness
Achieving a balanced life in the face of chronic illness
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DOI：
10.1071/py09039
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发表时间：
2010-01-01
影响因子：
1.3
通讯作者：
Aspin, Clive
中科院分区：
文献类型：
--
作者：
Jeon, Yun-Hee;Jowsey, Tanisha;Aspin, Clive
慢性病患病率的不断上升是大多数经济发达国家卫生系统改革的推动力。这些改革的一个一致主题是在医疗保健服务中更加以患者为中心。本研究旨在深入了解受慢性病影响的患者和家庭护理人员的经历，这将成为提出以患者为中心的政策和卫生系统干预措施的基础。参与者不断努力平衡自己的生活与日益增长的需求和慢性病的侵袭。他们实现平衡的努力受到服务分散、医疗服务导航的复杂性、与医疗专业人员和其他人的关系以及共病的严重阻碍。未来的政策方向包括设计护理和基础设施模式，使患者及其家庭护理人员能够平衡生活和疾病，并使以患者为中心的护理不仅在卫生服务范围内，而且与社区和社会支持服务保持一致。
The increasing prevalence of chronic disease is a driver of health system reform in most economically advanced nations. A consistent theme within these reforms is building greater patient-centredness into the health care delivery. This study aims to develop an in-depth understanding of the experience of patients and family carers affected by chronic illness that will be the basis on which to propose policy and health system interventions that are patient-centred. Participants struggled with the ongoing tasks of balancing their lives with the increasing demands and intrusion of chronic illness. Their attempts to achieve a balance were seriously hampered by fragmented services, complexity in navigating health services, relationships with health professionals and others, and co-morbidity. Future policy directions include designing models of care and infrastructure that enable patients and their family carers to balance life and illness, and aligning patient-centred care not only within health services but also with community and social support services.