The Social Networks and Social Support of Siblings of Children with Cancer.
The Social Networks and Social Support of Siblings of Children with Cancer.
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DOI：
10.3390/children9010113
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发表时间：
2022-01-15
期刊：
影响因子：
--
通讯作者：
Cloyes KG
中科院分区：
文献类型：
--
作者：
Wawrzynski SE;Alderfer MA;Kvistad W;Linder L;Reblin M;Guo JW;Cloyes KG
患有癌症的儿童需要支持来改善他们遇到的挑战;然而，对于兄弟姐妹存在什么类型和来源的支持知之甚少。这项研究解决了我们对社交网络的理解和对患有癌症的兄弟或姐妹的青少年的支持来源的差距。此外，我们还描述了兄弟姐妹如何获得支持，解决他们认为作为癌症儿童的兄弟姐妹最困难的方面。在半结构化访谈中，兄弟姐妹（12-17岁）构建了描述他们的支持网络的ecomap。数据按支持类型（情感、工具、信息、验证、陪伴）和支持提供者（例如，母亲、老师、朋友）。网络的特点和模式的支持进行了探讨。支持网络的规模范围为3至10人（M = 6 ± 1.9）;兄弟姐妹最常报告母亲为支持来源（n = 22，91.7%），其次是父亲（n = 19，79.2%），亲密朋友（n = 19，79.2%）和兄弟姐妹（有或无癌症）（n = 17，70.8%）。朋友和兄弟姐妹篇最经常提供验证和陪伴，而工具和信息支持来自父母。这项研究提供了有关兄弟姐妹支持网络的基础知识，可用于设计干预措施，改善对癌症儿童兄弟姐妹的支持。
Siblings of children with cancer need support to ameliorate the challenges they encounter; however, little is known about what types and sources of support exist for siblings. This study addresses this gap in our understanding of the social networks and sources of support for adolescents with a brother or sister who has cancer. Additionally, we describe how the support siblings receive addresses what they feel are the hardest aspects of being a sibling of a child with cancer. During semi-structured interviews, siblings (ages 12–17) constructed ecomaps describing their support networks. Data were coded for support type (emotional, instrumental, informational, validation, companionship) and support provider (e.g., mother, teacher, friend). Network characteristics and patterns of support were explored. Support network size ranged from 3 to 10 individuals (M = 6 ± 1.9); siblings most frequently reported mothers as sources of support (n = 22, 91.7%), followed by fathers (n = 19, 79.2%), close friends (n = 19, 79.2%) and siblings (with or without cancer) (n = 17, 70.8%). Friends and brothers or sisters most often provided validation and companionship while instrumental and informational supports came from parents. This study provides foundational knowledge about siblings’ support networks, which can be utilized to design interventions that improve support for siblings of children with cancer.
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