Active recruitment increased enrollment in a hereditary cancer registry.

Active recruitment increased enrollment in a hereditary cancer registry.
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积极招募增加了遗传性癌症登记处的登记人数。

DOI:
10.1016/j.jclinepi.2004.04.007
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发表时间:
2004
期刊:
Journal of clinical epidemiology.
影响因子:
--
通讯作者:
Griffin,ConstanceA
Griffin,ConstanceA
中科院分区:
--
文献类型:
--
作者:
Friebel,TaraM;Beutler,RuthAnne;Lee,ShingM;Bernhardt,BarbaraA;Helzlsouer,KathyJ;Griffin,ConstanceA

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背景和目的中大西洋癌症遗传学网络(MACGN)的目标是从癌症风险评估诊所招募个人进入国家遗传性癌症登记。我们试图确定在高危乳腺癌和卵巢癌诊所使用的不同招募方法是否会在MACN的招募方面产生差异。方法:在8个月的时间里比较两种招募方法。在征聘的头4个月中使用了一种被动的征聘技巧,包括分发一本小册子。在第二个4个月期间使用了一种积极的招募方法,要求MACGN招募人员接近患者并发起关于登记的简要讨论。结果在第一个4个月期间,158 8名患者在诊所就诊,142名患者在第二个4个月期间就诊。在被动招募期间,20%的可用患者得到了接触,而在主动招募期间,这一比例为63%。主动招募还导致登记人数比被动招募增加四倍(从15.6%增加到67.4%)。结论分配专门负责招募和与潜在参与者进行个人接触的研究人员,可以有效地增加国家遗传性癌症研究登记的登记人数。
BACKGROUND AND OBJECTIVEThe Mid-Atlantic Cancer Genetics Network (MACGN) targets individuals from cancer risk assessment clinics for recruitment into a national hereditary cancer registry. We sought to determine whether different recruitment methods used in a high-risk breast and ovarian cancer clinic yielded differences into enrollment into MACGN.METHODSTwo methods of recruitment were compared over an 8-month period. A passive recruitment technique, used during the first 4 months of recruitment, involved distribution of a brochure. An active recruitment method, used during the second 4-month period, required a MACGN recruiter to approach patients and initiate a brief discussion of the registry.RESULTSDuring the first 4-month period, 158 eight patients were seen in the clinic and 142 were seen in the second 4-month period. During passive recruitment, 20% of available patients were approached, compared with 63% during active recruitment. Active recruitment also resulted in fourfold increase over passive recruitment in enrollment (from 15.6% to 67.4%).CONCLUSIONAllocating research staff specifically for recruitment and personal contact with potential participants is effective in achieving increased enrollment into a national hereditary cancer research registry.