The process of becoming independent while balancing health management and social life in adolescent and young adult childhood cancer survivors
The process of becoming independent while balancing health management and social life in adolescent and young adult childhood cancer survivors
复制标题
青少年和青年儿童癌症幸存者在平衡健康管理和社会生活的同时变得独立的过程
DOI：
10.1111/jjns.12527
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发表时间：
2023
影响因子：
1.7
通讯作者：
Yuka Kato
中科院分区：
文献类型：
--
作者：
Kyoko Miyagishima;Kazuko Ichie;Kimiyoshi Sakaguchi;Yuka Kato
AimThis study aimed to elaborate the process of how adolescent and young adult childhood cancer survivors（CCS）become independent while balancing health management and social life with view to provide long-term support. MethodsSemi-structured interviews were carried out with 22 Japanese CCS against 16-25 years.数据进行了定性分析，然后使用修改后的扎根理论approach.ResultsSeven“类别”和35“概念”产生。这些类别和概念之间的联系揭示了在平衡健康管理和社会生活的同时变得独立的过程。这个过程的第一个阶段是“限制中的协调”，包括“对健康恶化的意识和担忧”和“平衡学业和治疗的调整”。这个阶段变成了“挑战自由和正常”和“从约束中释放”。心理发展则表现为“对周围人的感激”和“经历罕见疾病的支持”。然而，CCS也“面临着对癌症持续影响的担忧”，包括“意识到即使到成年也有必要继续住院”。通过这些经验，CCS达到阶段的“找到一种生活方式与自己，”这将健康管理与社会life.ConclusionsThese研究结果可以帮助父母和健康，教育和社会护理专业人员预测和分享CCS的身体状况，日常生活和心理社会发展的变化。CCS需要在协调癌症治疗和学校生活方面的支持，尝试他们想做的事情，自我管理自己的健康状况，并形成自己的身份，包括理解他们的疾病经历。
AimThis study aimed to elucidate the process of how adolescent and young adult childhood cancer survivors (CCSs) become independent while balancing health management and social life with a view to providing long‐term support.MethodsSemi‐structured interviews were conducted with 22 Japanese CCSs aged 16–25 years. The data were then qualitatively analysed using the modified grounded theory approach.ResultsSeven “categories” and 35 “concepts” were generated. The connections among these categories and concepts revealed the process of becoming independent while balancing health management and social life. The first phase in the process is “coordination within constraints,” which includes “consciousness and worries about deteriorating health” and “adjustments to balance schoolwork and treatment.” This phase changes into “challenges to being free and normal” and “release from constraints.” Psychological development then occurs as “gratitude toward surrounding people” and “sustenance from experiencing a rare illness.” However, CCSs also “face worries about the persistent effects of cancer,” including “awareness of the necessity to continue hospital visits even into adulthood.” Through these experiences, CCSs reach the phase of “finding a way to live with oneself,” which integrates health management with social life.ConclusionsThese findings may help parents and health, education, and social‐care professionals anticipate and share changes in CCSs physical condition, daily life, and psychosocial development. CCSs need support in terms of coordinating cancer therapy and school life, trying what they want to do, self‐managing their own health condition, and forming their identity, including making sense of their illness experience.