Trust, benefit, satisfaction, and burden - A randomized controlled trial to reduce cancer risk through African-American churches

Trust, benefit, satisfaction, and burden - A randomized controlled trial to reduce cancer risk through African-American churches
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DOI:
10.1046/j.1525-1497.2003.21061.x
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发表时间:
2003-07-01
影响因子:
5.7
通讯作者:
Switzer, B
Switzer, B
中科院分区:
医学2区
文献类型:
--
作者:
Corbie-Smith, G;Ammerman, AS;Switzer, B

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背景:基于社区的参与式研究 (CBPR) 方法积极让社区参与研究,被认为会带来相关发现、信任关系和对研究过程的更大满意度。目的:检查社区成员对参与相关的信任、利益、满意度和负担的看法。设计、设置和参与者:一项随机对照试验测试了非裔美国教会成员的癌症预防干预措施。在基线和一年的随访中收集数据。测量:子量表测量了对研究项目和项目团队的信任感、参与项目的收益、对项目和团队的满意度以及与参与相关的负担的感知。主要结果:总体而言,我们发现社区成员在“接触非洲裔美国人以增加明智饮食”的伙伴关系中具有高水平的信任、感知利益和满意度,以及较低的感知负担。在双变量分析中,干预组的参与者报告了更多的感知利益和信任 (P < .05)。较小教会的参与者报告了更多的利益、满意度和信任,而来自最近没有健康活动的教会的参与者则认为项目和团队的利益更大、满意度更高、负担更轻 (P < .05)。牧师受教育程度较低的参与者获得了更高的收益和满意度;那些牧师正在改变个人生活方式的人注意到更高的收益和满意度,但也报告了更高的负担(P < .05)。结论:采用 CBPR 方法设计的随机临床试验与高水平的信任和对研究过程满意度的感知收益相关。了解对研究伙伴关系的反应变化将有助于指导未来 CBPR 工作的设计和实施。
BACKGROUND: Community-based participatory research (CBPR) approaches that actively engage communities in a study are assumed to lead to relevant findings, trusting relationships, and greater satisfaction with the research process.OBJECTIVE: To examine community members' perceptions of trust, benefit, satisfaction, and burden associated with their participation.DESIGN, SETTING, AND PARTICIPANTS: A randomized controlled trial tested a cancer prevention intervention in members of African-American churches. Data were collected at baseline and 1-year follow-up.MEASUREMENTS: Subscales measured perception of trust in the research project and the project team, benefit from involvement with the project, satisfaction with the project and the team, and perception of burden associated with participation.MAIN RESULTS: Overall, we found high levels of trust, perceived benefit, and satisfaction, and low perceived burden among community members in Partnership to Reach African Americans to Increase Smart Eating. In bivariate analyses, participants in the intervention group reported more perceived benefit and trust (P < .05). Participants in smaller churches reported more benefit, satisfaction and trust, while participants from churches without recent health activities perceived greater benefit, greater satisfaction, and lower burden with the project and the team (P < .05). Participants whose pastors had less educational attainment noted higher benefit and satisfaction; those whose pastors were making personal lifestyle changes noted higher benefit and satisfaction, but also reported higher burden (P < .05).CONCLUSIONS: A randomized clinical trial designed with a CBPR approach was associated with high levels of trust and a perceived benefit of satisfaction with the research process. Understanding variations in responses to a research partnership will be helpful in guiding the design and implementation of future CBPR efforts.