Patients' Experiences of Being a Burden on Family in Terminal Illness.
Patients' Experiences of Being a Burden on Family in Terminal Illness.
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DOI：
10.1097/01.njh.0000289656.91880.f2
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发表时间：
2007-09-01
期刊：
影响因子：
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通讯作者：
Nolan, Marie T
中科院分区：
文献类型：
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作者：
Johnson, Julia Overturf;Sulmasy, Daniel P;Nolan, Marie T
对患有慢性病和危及生命的疾病的人的研究表明，他们害怕成为家庭的负担。本案例研究的目的是深入探讨三个患有不同绝症的人的这种担忧。参与者是一项更大的临终决策研究的一部分，并被选中参加这项研究，因为他们的疾病的特点是健康状况稳步下降（肌萎缩侧索硬化症），快速下降（IV期肺癌）或不确定的下降轨迹（晚期心力衰竭）。对他们的访谈进行了内容分析，得出了四个主题：管理负担、灵性、支持关系和规划未来。主题包含与害怕成为负担有关的特定类别的思想，感受和行动。这些主题应在未来更大规模的研究与晚期疾病的人更深入地探讨。
Studies of persons with chronic and life-threatening illness have revealed a fear of being a burden on family. The purpose of this case study was to explore that concern in-depth in three persons with different terminal illnesses. Participants were part of a larger study of end-of-life decision making and were selected for this study because their illnesses are characterized by a steady decline in health (amyotrophic lateral sclerosis), a rapid decline (stage IV lung cancer), or an uncertain trajectory of decline (advanced heart failure). Content analysis of their interviews resulted in four themes: managing the burden, spirituality, supportive relationships, and planning for the future. Themes contained specific categories of thoughts, feelings, and actions related to fear of being a burden. These themes should be explored in greater depth in future larger studies of persons with terminal illness.