The top research questions asked by people with lived depression experience in Alberta: a survey.
The top research questions asked by people with lived depression experience in Alberta: a survey.
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DOI：
10.9778/cmajo.20180034
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发表时间：
2018-07-01
期刊：
影响因子：
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通讯作者：
Mason-Lai, Ping
中科院分区：
文献类型：
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作者：
Breault, Lorraine J;Rittenbach, Katherine;Mason-Lai, Ping
背景：为了支持阿尔伯塔省以患者为导向确定抑郁症研究的优先事项，阿尔伯塔省以患者为导向研究战略的患者参与平台（该平台为人员以及以患者为导向的研究和试验部门提供支持）以及阿尔伯塔省卫生服务局的成瘾和心理健康战略临床网络，与成瘾和心理健康领域的合作伙伴一起，设计了阿尔伯塔省抑郁症研究优先事项确定项目。该项目的目的是就阿尔伯塔省的患者、护理人员以及临床医生/研究人员认为关于抑郁症最重要的未解答问题进行调查。
方法：该项目将詹姆斯·林德联盟优先事项确定合作方法改编为一个6步流程，以收集有抑郁症生活经历的人（包括患者、护理人员、临床医生和医疗从业者）提出的关于抑郁症的问题并确定其优先级。
结果：从最初的数据收集到最终确定优先事项，该项目的实施历时10个月（2016年8月至2017年6月）。共有445名有抑郁症生活经历的阿尔伯塔人参与，最终确定了11个跨越健康连续体、生命阶段以及治疗和预防机会的抑郁症研究优先问题。
解释：该项目是具有积极影响抑郁症研究潜力的基础性步骤。纳入有生活经历的阿尔伯塔人的声音将为阿尔伯塔人、研究人员和研究资助者的抑郁症研究以及整个研究事业中的患者参与创造优势。
BACKGROUND: To support patient-oriented setting of priorities for depression research in Alberta, the Patient Engagement Platform of the Alberta Strategy for Patient Oriented Research's Support for People and Patient-Oriented Research and Trials Unit and Alberta Health Services' Addiction and Mental Health Strategic Clinical Network, along with partners in addictions and mental health, designed the Alberta Depression Research Priority Setting Project. The aim of the project was to survey patients, caregivers and clinicians/researchers in Alberta about what they considered to be the most important unanswered questions about depression.METHODS: The project adapted the James Lind Alliance Priority Setting Partnership method into a 6-step process to gather and prioritize questions about depression posed by people with lived depression experience, which included patients, caregivers, clinicians and health care practitioners.RESULTS: Implementation of the project, from initial data collection to final priority setting, took 10 months (August 2016 to June 2017). A total of 445 Albertans with lived experience of depression participated, ultimately identifying 11 priority depression research questions spanning the health continuum, life stages, and treatment and prevention opportunities.INTERPRETATION: This project is a fundamental step that has the potential to positively influence depression research. Including the voices of Albertans with lived experience will create advantages for depression research for Albertans, researchers and research funders, and for patient engagement in the research enterprise overall.