A pilot study comparing traumatic stress symptoms by child and parent report across pediatric chronic illness groups.
A pilot study comparing traumatic stress symptoms by child and parent report across pediatric chronic illness groups.
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DOI：
10.1097/dbp.0b013e3181f17c52
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发表时间：
2010-11
期刊：
影响因子：
--
通讯作者：
Janicke DM
中科院分区：
文献类型：
--
作者：
Ingerski LM;Shaw K;Gray WN;Janicke DM
研究人员最近使用创伤应激的框架来描述经历慢性疾病的儿童及其家庭的心理功能;然而，很少有研究直接比较疾病组之间的症状。目前的研究比较了被考虑进行实体器官和骨髓移植的青年、被诊断患有人类免疫缺陷病毒（HIV）的青年、被诊断患有镰状细胞病（SCD）的青年及其父母的创伤应激症状。这些人群中的创伤性压力的相关性也被研究。参与者包括64名青年和照顾者的二人组，他们之前在三个专科诊所之一预约了预约。父母完成了家庭人口统计学，创伤应激症状和儿童功能状态的措施。青年（n=45）和父母各自完成自我报告和家长代理措施的青年创伤应激症状。10%的青少年自我报告，18%的青少年父母代理报告，13%的照顾者描述了暗示PTSD的症状。儿童移植的父母自我报告的症状比HIV和SCD青年的照顾者更严重（p<0.05）。虽然儿童功能障碍不能预测儿童症状，但发现一种趋势，即父母经历更多的创伤性应激症状，他们自己报告他们的孩子经历了更大的症状，由父母代理报告（p= 0.07）。研究结果表明，虽然疾病组中的大多数儿童和父母报告了亚临床水平的创伤应激症状，但创伤应激症状可能对儿科移植候选人的家庭尤为突出。虽然目前有治疗PTSD症状的干预措施，但它们可能需要个性化，以满足特定疾病群体的需求。
Researchers have recently used a framework of traumatic stress to describe the psychological functioning of children experiencing a chronic illness and their families; however, few studies are available directly comparing symptoms across disease groups. The current study compared traumatic stress symptoms of youth being considered for solid organ and bone marrow transplantation, youth diagnosed with Human Immunodeficiency Virus (HIV), youth diagnosed with sickle cell disease (SCD) and their parents. Correlates of traumatic stress across these populations were also examined. Participants included 64 youth and caregiver dyads with previously scheduled appointments at one of three specialty clinics. Parents completed measures of family demographics, traumatic stress symptoms, and child functional status. Youth (n=45) and parents each completed self-report and parent-proxy measures of youth traumatic stress symptoms. 10% of youth by self-report, 18% of youth by parent-proxy report, and 13% of caregivers described symptoms suggestive of PTSD. Parents of pediatric transplant self-reported greater symptoms than caregivers of youth with HIV and SCD (p<.05). While child functional impairment did not predict child symptoms, a trend was found where parents experiencing more traumatic stress symptoms themselves reported their children experienced greater symptoms by parent-proxy report (p=.07). Findings suggest that while most children and parents across disease groups report sub-clinical levels of traumatic stress symptoms, traumatic stress symptoms may be especially salient for families of pediatric transplant candidates. While interventions are currently available to treat PTSD symptoms, they will likely need to be individualized to meet the needs of specific disease groups.