Delivery of Internet-based cancer genetic counselling services to patients' homes: a feasibility study
Delivery of Internet-based cancer genetic counselling services to patients' homes: a feasibility study
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DOI：
10.1258/jtt.2010.100116
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发表时间：
2011-01-01
影响因子：
4.7
通讯作者：
Zubarev, Vadim
中科院分区：
文献类型：
--
作者：
Meropol, Neal J.;Daly, Mary B.;Zubarev, Vadim
我们研究了家庭视频会议为高危人群提供癌症遗传教育和风险信息的可行性。向可能患有遗传性结肠癌或乳腺癌和卵巢癌综合征的成年人提供基于互联网的咨询。参与者被发送网络摄像头和软件安装在他们的家庭电脑上。他们观看了预先录制的教育视频，然后参加了遗传咨询师的现场咨询会议。共有31人参加了互联网辅导课程。在所研究的所有领域，对咨询的满意度都很高，包括技术（1-5级平均4.3分）、教育（平均4.7分）、沟通（平均4.8分）、心理社会（平均4.1分）和总体（平均4.2分）。定性数据确定了可以改进的技术方面。所有参与者都报告说，他们会向其他人推荐基于互联网的咨询。基于互联网的遗传咨询是可行的，参与者满意度高。
We examined the feasibility of home videoconferencing for providing cancer genetic education and risk information to people at risk. Adults with possible hereditary colon or breast and ovarian cancer syndromes were offered Internet-based counselling. Participants were sent web cameras and software to install on their home PCs. They watched a prerecorded educational video and then took part in a live counselling session with a genetic counsellor. A total of 31 participants took part in Internet counselling sessions. Satisfaction with counselling was high in all domains studied, including technical (mean 4.3 on a 1-5 scale), education (mean 4.7), communication (mean 4.8), psychosocial (mean 4.1) and overall (mean 4.2). Qualitative data identified technical aspects that could be improved. All participants reported that they would recommend Internet-based counselling to others. Internet-based genetic counselling is feasible and associated with a high level of satisfaction among participants.