Public Knowledge and Attitude toward Essential Tremor: A Questionnaire Survey.
Public Knowledge and Attitude toward Essential Tremor: A Questionnaire Survey.
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DOI：
10.3389/fneur.2016.00060
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发表时间：
2016
影响因子：
3.4
通讯作者：
Louis ED
中科院分区：
文献类型：
--
作者：
Shalaby S;Indes J;Keung B;Gottschalk CH;Machado D;Patel A;Robakis D;Louis ED
公众对疾病的认识和态度是患者的重要问题。公众对特发性震颤（ET）的认识从未被研究过。我们管理了一个10分钟，31个项目的问卷调查250连续登记。这些包括三个样本精心挑选，有一个潜在的范围内的ET的认识：100人确定从血管疾病诊所，100人从一般神经科诊所，和50名帕金森病（PD）患者。撇开PD患者不谈，只有10-15%的参与者听说过或读过“ET”。即使在PD患者中，也只有32.7%的人听说过或读过ET。在为登记者提供了ET的三个同义术语（“良性震颤”、“动力性震颤”、“家族性震颤”）后，约40%的非PD登记者和51.0%的PD登记者曾经听说过或读到过这种情况。即使在听说过ET的参与者中，约10%的人不知道主要症状是什么，1/3的人不确定或认为ET是与PD相同的疾病，1/4的人认为ET是与虚弱或衰老相关的震颤相同的疾病，2/3的人将其归因于奇怪的原因（例如，创伤或酗酒），只有1/3的人知道治疗性脑外科手术的存在，不到1/2的人知道儿童可能患有ET，3/4的人不知道患有ET的名人或历史人物。因此，缺乏知识和误解是普遍现象。公众对ET的存在和特征的认识总体上很差。提高认识对ET社区很重要。
Public awareness of and attitude toward disease is an important issue for patients. Public awareness of essential tremor (ET) has never been studied. We administered a 10-min, 31-item questionnaire to 250 consecutive enrollees. These included three samples carefully chosen to have a potential range of awareness of ET: 100 individuals ascertained from a vascular disease clinic, 100 individuals from a general neurology clinic, and 50 Parkinson’s disease (PD) patients. Leaving aside PD patients, only 10–15% of enrollees had ever heard of or read about “ET.” Even among PD patients, only 32.7% had ever heard of or read about ET. After providing enrollees with three synonymous terms for ET (“benign tremor,” “kinetic tremor,” “familial tremor”), ~40% of non-PD enrollees and 51.0% with PD had ever heard or read about the condition. Even among participants who had heard of ET, ~10% did not know what the main symptom was, 1/3 were either unsure or thought ET was the same disease as PD, 1/4 thought that ET was the same condition as frailty- or aging-associated tremor, 2/3 attributed it to odd causes (e.g., trauma or alcohol abuse), only 1/3 knew of the existence of therapeutic brain surgery, fewer than 1/2 knew that children could have ET, and 3/4 did not know of a celebrity or historical figure with ET. Hence, lack of knowledge and misconceptions were common. Public knowledge of the existence and features of ET is overall poor. Greater awareness is important for the ET community.