"We needed to change the mission statement of the marriage': biographical disruptions, appraisals and revisions among couples living with endometriosis
"We needed to change the mission statement of the marriage': biographical disruptions, appraisals and revisions among couples living with endometriosis
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DOI：
10.1111/1467-9566.12392
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发表时间：
2016-06-01
影响因子：
2.9
通讯作者：
Raine-Fenning, Nick
中科院分区：
文献类型：
--
作者：
Hudson, Nicky;Culley, Lorraine;Raine-Fenning, Nick
传记中断的概念在慢性病的社会学研究中得到了广泛的应用，并经历了许多理论的审视、反思和发展。然而，很少有人注意到个人层面以外的传记破坏的影响。本文从二元的角度探讨了这一概念，利用了一项探索性定性研究（ENDOPART）的数据，该研究调查了子宫内膜异位症对女性及其男性伴侣的影响。共有22对夫妇参加了深入的，半结构化的，面对面的采访。这些妇女及其伴侣分别接受采访，在大多数情况下，由不同的采访者同时进行采访。数据分析是由一个解释主义的关系方法，前景化的意义参与者适用于他们的经验，治疗访谈帐户，并探讨合作伙伴的帐户相互关系。两种分析方法产生了几个主题的背景下，传记中断的概念探索：性和亲密关系;计划和有孩子;工作生活和社会生活。文章认为，传记中断是社会和相互关系的过程，并讨论了如何与子宫内膜异位症的夫妇生活谈判这些中断，他们是如何被评估，以及如何生活和期望被修改的结果。
The concept of biographical disruption has been widely applied in sociological explorations of chronic illness and has been subject to much theoretical scrutiny, reflection and development. However, little attention has been given to the impact of biographical disruption beyond the individual level. This article explores the concept from a dyadic perspective, utilising data from an exploratory, qualitative study (ENDOPART) that investigated the impact of endometriosis on women and their male partners. In total, 22 couples participated in in-depth, semi-structured, face-to-face interviews. The women and their partners were interviewed separately and, in most cases, simultaneously, by different interviewers. Data analysis was informed by an interpretivist relational approach, foregrounding the meanings participants applied to their experiences, treating interviews as accounts, and exploring partners' accounts in relation to one another. Two analytic approaches generated several themes for exploration in the context of the concept of biographical disruption: sex and intimacy; planning for and having children; working lives and social lives. The article argues that biographical disruptions are social and inter-relational processes and discusses how couples living with endometriosis negotiated these disruptions, how they were appraised and how lives and expectations were revised as a result.