The perspective of patients on their experience of powerlessness
The perspective of patients on their experience of powerlessness
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DOI：
10.1177/1049732307302665
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发表时间：
2007-07-01
影响因子：
3.2
通讯作者：
Deccache, Alain
中科院分区：
文献类型：
--
作者：
Aujoulat, Isabelle;Luminet, Olivier;Deccache, Alain
虽然自决权是一个关键问题，在赋权，病人的角度对他们的经验，赋权一直调查不足。作者试图更好地理解赋权过程对患者意味着什么，通过调查赋权过程可能演变的无能为力的情况和感觉。他们对40名患有各种慢性病的患者进行了采访，并寻找他们无力感经历的共同点。他们的研究结果表明，无力感远远超出了严格的医疗和治疗相关问题，因为研究参与者都表达或证明在某个时候经历过令人痛苦的不安全感以及对其社会和个人身份的威胁。因此，作者建议，授权提供者-患者互动应解决这些问题，提供保证和自我探索的机会，作为参与和自主决定治疗相关决策的先决条件。
Although self-determination is a key issue in empowerment, the perspective of patients on their experience of empowerment has been poorly investigated. The authors have attempted to understand better what the process of empowerment means to patients by investigating the situations and feelings of powerlessness from which a process of empowerment might evolve. They conducted 40 interviews of patients with various chronic conditions and looked for the commonalities in their experiences of powerlessness. Their findings show that powerlessness extends well beyond strictly medical and treatment-related issues, as the study participants all expressed or demonstrated to have at some point or another experienced a distressing feeling of insecurity and a threat to their social and personal identities. The authors therefore suggest that an empowering provider-patient interaction should address these issues by providing for reassurance and opportunities for self-exploration as a prerequisite to participation and self-determination in treatment-related decisions.