Bioethics, (Funding) Priorities, and the Perpetuation of Injustice
Bioethics, (Funding) Priorities, and the Perpetuation of Injustice
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DOI：
10.1080/15265161.2020.1867934
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发表时间：
2020-12-22
影响因子：
13.4
通讯作者：
Goldberg, Daniel S.
中科院分区：
文献类型：
--
作者：
Fabi, Rachel;Goldberg, Daniel S.
如果资金分配是一个领域优先事项的指标，那么生物伦理领域的优先事项就不一致，因为它们使不公正现象长期存在。社会不公正要求优先考虑导致系统性劣势的因素，而这些因素往往不是学术生物伦理学资助的领域。目前的资助优先事项过分强调旨在改善人类状况的技术，而没有解决基于种族主义的潜在结构性不平等，并且不强调有色人种学者最常从事的研究领域，从而违反了社会正义。在生物伦理学研究中，对健康的上游决定因素缺乏关注，这使得了解健康状况不佳社区的经历所需的资源长期存在缺口，这本身就是一种认识上的不公正。无论是在公众还是在生物伦理学界，这些资助优先事项对有色人种的影响都明显存在社会和认识上的不公正。
If funding allocation is an indicator of a field's priorities, then the priorities of the field of bioethics are misaligned because they perpetuate injustice. Social injustice mandates priority for the factors that drive systematic disadvantage, which tend not to be the areas supported by funding within academic bioethics. Current funding priorities violate social justice by overemphasizing technologies that aim to enhance the human condition without addressing underlying structural inequalities grounded in racism, and by deemphasizing areas of inquiry most frequently pursued by Scholars of Color. This lack of attention to upstream determinants of health in bioethics research perpetuates a gap in the resources needed to understand the experiences of communities disproportionately experiencing poor health, which is itself a form of epistemic injustice. Both social and epistemic injustices are apparent in the impact of these funding priorities on people of color, both in the public and in the bioethics community.