The effect of experiential knowledge on construction of risk perception in hereditary breast/ovarian cancer.
The effect of experiential knowledge on construction of risk perception in hereditary breast/ovarian cancer.
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DOI：
10.1007/s10897-005-1500-0
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发表时间：
2005-02-01
影响因子：
1.9
通讯作者：
d'Agincourt-Canning, Lori
中科院分区：
文献类型：
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作者：
d'Agincourt-Canning, Lori
本研究的目的是探讨对遗传性乳腺癌/卵巢癌的经验知识与对个人癌症风险的理解之间的联系。采用定性研究设计，研究者对来自遗传性乳腺癌/卵巢癌高危家庭的53名个体（45名女性，8名男性）进行了深度访谈。研究结果表明，两种形式的经验知识，即移情知识和具身知识，对参与者对癌症风险的构建是不可或缺的。他们还表明，从经验中获得的知识往往优先于客观的临床风险估计。本文讨论了这些发现的临床意义，并建议咨询策略，扩大病人的生活经验和疾病的知识，可以加强遗传风险的沟通。对经验知识的评估有望提出构建遗传信息的新方法，这将使人们更好地了解他们的客观风险或修改夸大和/或不准确的风险感知。
The purpose of this study was to explore the connection between experiential knowledge of hereditary breast/ovarian cancer and understandings of personal cancer risk. Using a qualitative research design, the investigator conducted in-depth interviews with 53 individuals (45 female, 8 male) from families at high-risk for hereditary breast/ovarian cancer. Study results showed that two forms of experiential knowledge, empathetic and embodied knowledge, were integral to participants' constructions of their cancer risk. They also illustrated that knowledge derived from experience often took precedence over objective clinical estimates of risk. The paper discusses the clinical implications of these findings and suggests that counseling strategies, which expand upon patient's lived experience and knowledge of the disease, may enhance communication of genetic risk. Assessment of experiential knowledge promises to suggest new ways to frame genetic information that will enable people to better understand their objective risk or to modify exaggerated and/or inaccurate risk perceptions.