Patient-Reported Outcomes Measurement Information System (PROMIS): Efficient, standardized tools to measure self-reported health and quality of life

Patient-Reported Outcomes Measurement Information System (PROMIS): Efficient, standardized tools to measure self-reported health and quality of life
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DOI:
10.1016/j.outlook.2014.05.009
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发表时间:
2014-09-01
期刊:
影响因子:
4.3
通讯作者:
Cella, David
Cella, David
中科院分区:
医学2区
文献类型:
--
作者:
Bevans, Margaret;Ross, Alyson;Cella, David

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所有护士都对疾病和治疗对个人的影响感兴趣。患者报告结局(PRO)测量用于获得有关症状、功能、感知和经历的自我报告信息。然而,它们的使用存在挑战,包括同一概念的多项措施,质量差异很大,过度的长度和复杂性,以及难以比较研究和条件之间的结果。为了应对这些挑战,美国国立卫生研究院资助了患者报告结局测量信息系统(PROMIS),这是一个基于网络的存储库,包含与临床医生和研究人员相关的有效和可靠的PRO健康概念测量。通过PROMIS评估中心,临床医生和研究人员可以访问PRO措施,管理计算机化的适应性测试,收集自我报告数据,并报告即时健康评估。本文的目的是总结PROMIS措施的发展和验证,并描述其当前的功能,因为它涉及到护理科学。
All nurses are interested in the effects of diseases and treatments on individuals. Patient-reported outcome (PRO) measures are used to obtain self-reported information about symptoms, function, perceptions, and experiences. However, there are challenges to their use, including multiple measures of the same concept, widely varying quality, excessive length and complexity, and difficulty comparing findings across studies and conditions. To address these challenges, the National Institutes of Health funded the Patient-Reported Outcomes Measurement Information System (PROMIS), a web-based repository of valid and reliable PRO measures of health concepts relevant to clinician and researchers. Through the PROMIS Assessment Center, clinicians and researchers can access PRO measures, administer computerized adaptive tests, collect self-report data, and report instant health assessments. The purpose of this article was to summarize the development and validation of the PROMIS measures and to describe its current functionality as it relates to nursing science.