Living with pulmonary artery hypertension: Patients' experiences
Living with pulmonary artery hypertension: Patients' experiences
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DOI：
10.1016/j.hrtlng.2004.06.010
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发表时间：
2005-03-01
期刊：
影响因子：
2.8
通讯作者：
Salyer, J
中科院分区：
文献类型：
--
作者：
Flattery, MP;Pinson, JM;Salyer, J
背景技术背景：随着新的治疗选择的出现，对肺动脉高压（PAH）患者药物治疗结局的研究有所增加。几乎没有调查已经做了对生活的影响与肺动脉高压，尽管推断，生活质量（QOL）improved.Purpose：这项定性研究的目的是描述患者的经验，生活与肺动脉高压，并确定因素，可能有影响的生活质量。（n = 11; 8名女性，3名男性）选自42名40至72岁的成年患者，在三级护理医院的门诊环境中随访。多种类型的治疗方式，包括钙通道阻滞剂，内皮素受体拮抗剂，前列环素类似物，和肺transplantation.METHODS：半结构化访谈，让参与者描述的经验与PAH的生活。访谈录在录音带上，并逐字转录。分析是根据Colaizzi的现象学数据分析7步流程进行的。结果：出现了两个首要主题，表明参与者经历了与这种疾病的各个方面相关的不确定性，但也学会了科普这种不确定性并继续他们的生活。含义：如果患者要成功地适应疾病及其治疗的要求，就必须帮助患者科普与这种慢性健康问题相关的不确定性。关注这项研究的结果应该指导医疗保健专业人员努力提高这一患者人群的生活质量。
BACKGROUND: Research on the outcomes of medical therapy in persons with pulmonary artery hypertension (PAH) has increased as new therapeutic options have emerged. Little investigation has been done on the impact of living with PAH despite inferences that quality of life (QOL) improves.PURPOSE: The purpose of this qualitative study was to describe patient experiences of living with PAH and identify factors that may have an impact on QOL.PARTICIPANTS: Participants (n = 11; 8 women, 3 men) were selected from among 42 adult patients, 40 to 72 years of age, followed in an outpatient setting at a tertiary care hospital. Multiple types of treatment modalities were represented including calcium channel blockers, endothelin-receptor antagonists, prostacyclin analog, and lung transplantation.METHODS: Semistructured interviews allowed participants to describe experiences living with PAH. Interviews were recorded on audiotape and transcribed verbatim. Analysis was conducted in accordance with Colaizzi's 7-step process for analysis of phenomenologic data.RESULTS: Two overarching themes emerged indicating that participants experience uncertainty associated with a variety of aspects of this illness but also learn to cope with this uncertainty and move on with their lives.IMPLICATIONS: Assisting patients to cope with the uncertainty associated with this chronic health problem is essential if patients are to successfully adjust to the demands of the illness and its treatment. Attention to the findings of this study should guide health care professionals in their efforts to improve QOL in this patient population.