Development of a social morbidity score in patients with chronic ulcerative colitis as a potential guide to treatment.
Development of a social morbidity score in patients with chronic ulcerative colitis as a potential guide to treatment.
复制标题
制定慢性溃疡性结肠炎患者的社会发病率评分作为潜在的治疗指南。
DOI：
10.1111/j.1463-1318.2012.02880.x
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发表时间：
2012
期刊：
影响因子：
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通讯作者：
Nicholls,RJ
中科院分区：
文献类型：
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作者：
Smith,JJ;Netuveli,G;Sleight,SP;Das,P;Tekkis,PP;Gabe,SM;Clark,SK;Nicholls,RJ
目前用于炎症性肠病的生活质量仪器没有评估患者生活的许多社会方面，而这些方面在临床决策中可能很重要。我们开发了一个新的慢性疾病的社会影响-炎症性肠病（SICC‐IBD）问卷来评估这些领域。方法采用一份包含34个项目的问卷调查，以确定与教育、人际关系、就业、独立和财务相关的生活质量。在内窥镜监测登记的150例从未接受过手术的慢性溃疡性结肠炎患者中，将其与短表36 -条目第2版（SF - 36v2）和炎症性肠病问卷（IBDQ）进行比较。结果经信效度检验，问卷内容缩减至8项。信度较高（Cronbach’s α = 0.72）。该问卷与SF - 36的社会功能域相关良好（rs= 0.56），能够区分疾病的临床严重程度。SICC‐IBD是一种评估溃疡性结肠炎患者的新工具，它确定了社会残疾的新方面，可供进一步研究，并有可能作为治疗决策的附加工具。
AimPresent quality of life instruments for inflammatory bowel disease do not evaluate many social aspects of patients’ lives that are potentially important in clinical decision making. We have developed a new Social Impact of Chronic Conditions – Inflammatory Bowel Disease (SICC‐IBD) questionnaire to assess these areas.MethodA 34‐item questionnaire was piloted to determine quality of life relating to education, personal relationships, employment, independence and finance. It was compared with the Short Form 36‐Item version 2 (SF‐36v2) and the Inflammatory Bowel Disease Questionnaire (IBDQ) in 150 patients with chronic ulcerative colitis on an endoscopic surveillance register who had never had surgery.ResultsReliability and validity testing enabled the questionnaire to be shortened to only eight items. There was a high level of reliability (Cronbach’s α = 0.72). The questionnaire correlated well with the social functioning domain of the SF‐36 (rs= 0.56) and was able to distinguish clinical severity of disease.ConclusionThe SICC‐IBD is a new tool for assessment of patients with ulcerative colitis, which has identified new aspects of social disability for further study and for potential use as an additional tool in therapy decisions.