Requirements and access needs of patients with chronic disease to their hospital electronic health record: results of a cross-sectional questionnaire survey
Requirements and access needs of patients with chronic disease to their hospital electronic health record: results of a cross-sectional questionnaire survey
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DOI：
10.1136/bmjopen-2016-012257
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发表时间：
2016-01-01
期刊：
影响因子：
2.9
通讯作者：
Peckham, D. G.
中科院分区：
文献类型：
--
作者：
White, H.;Gillgrass, L.;Peckham, D. G.
目的：识别患者对个性化访问二级医疗电子健康记录（EHR）所需功能的看法及其开发优先级。设计：定量分析患者对二级医疗EHR所需EHR功能的看法的横截面自我完成调查，包括功能的患者排名。设置：参与者：201名成年人（106名（52.7%）男性），中位年龄29岁（范围17-58岁），进入并完成了研究。入选标准如下：确诊囊性纤维化，年龄16岁及以上，在临床稳定时。结果测量：4个主题内的定量响应;（1）对EHR各方面的重视;（2）对EHR功能的访问要求;（3）对发送到EHR的信息的看法;（4）输入EHR的患者反馈。获得了EHR的15个功能的排名得分。最高收视率（非常重要/重要的报告项目百分比）报告了获得临床指标（肺功能（94%）、C反应蛋白（84%）、痰微生物（81%）和血液结果（80%）），药物变化（82%）和列表（83%），发送重复处方（83%）和治疗请求（80%），而发送症状日记则较少（62%）。与临床医生的电子邮件联系是EHR最有价值的沟通元素（84%非常重要/重要）。EHR的15个特征（1=最理想至15 =最不理想），患者确定了“临床措施”（2.62（CI 2.07 - 3.06））和“获取药物清单”（4.91（CI 4.47至5.44）），作为开发的最高优先事项，并能够对错误/遗漏提出评论（11.0（CI 10.6至11.5））或护理经验（11.8（CI 11.4至12.2））为最低。结论：患者希望广泛的个人访问他们的医院EHR，高度重视实际的临床措施和药物管理。这些影响到日常护理，是发展的优先事项。
Objectives: To identify patient's views on the functionality required for personalised access to the secondary care electronic health record (EHR) and their priorities for development.Design: Quantitative analysis of a cross-sectional self-complete survey of patient views on required EHR functionality from a secondary care EHR, including a patient ranking of functionality.Setting: Secondary care patients attending a regional cystic fibrosis unit in the north of England.Participants: 201 adults (106 (52.7%) males), median age 29 years (range 17-58 years), entered and completed the study. Inclusion criteria are as follows: a confirmed diagnosis of cystic fibrosis, aged 16 years and over, at the time of clinical stability.Outcome measures: Quantitative responses within 4 themes; (1) value placed on aspects of the EHR; (2) access requirements to functions of the EHR; (3) views on information sent to the EHR and (4) patient feedback entered into the EHR. A ranked score for 15 functions of the EHR was obtained.Results: Highest ratings (% reporting item as very important/important) were reported for access to clinical measures (lung function (94%), C reactive protein (84%), sputum microbiology (81%) and blood results (80%)), medication changes (82%) and lists (83%) and sending repeat prescription (83%) and treatment requests (80%), while sending symptom diaries was less so (62%). Email contact with clinicians was the most valuable communication element of the EHR (84% very important/important). Of 15 features of the EHR (1= most desirable to 15 = least desirable), patients identified 'clinical measures' (2.62 (CI 2.07 to 3.06)), and 'access to medication lists' (4.91 (CI 4.47 to 5.44)), as highest priority for development and the ability to comment on errors/omissions (11.0 (CI 10.6 to 11.5)) or experience of care (11.8 (CI 11.4 to 12.2)) as lowest.Conclusions: Patients want extensive personal access to their hospital EHR, placing high importance on the viewing of practical clinical measures and medication management. These influence routine day-to-day care and are priorities for development.