Carer Experience Supporting Someone With Dementia and Cancer: A Narrative Approach
Carer Experience Supporting Someone With Dementia and Cancer: A Narrative Approach
复制标题
DOI：
10.1177/1049732317736285
复制
发表时间：
2018-04-01
影响因子：
3.2
通讯作者：
Beddow, Anna
中科院分区：
文献类型：
--
作者：
Witham, Gary;Haigh, Carol;Beddow, Anna
在这篇文章中，我们研究了非正式的照顾者支持痴呆症和癌症患者在英国的挑战。访谈进行了七个非正式的照顾者使用叙事的方法来研究他们的经验建设。我们的研究结果展示了非正式护理人员如何通过复杂的癌症治疗和支持他们的亲属导航路径。癌症诊断通常需要到肿瘤中心进行多次治疗，这对护理人员来说可能是一个挑战。他们发现，在获得适当的服务和支持方面，他们需要协调和管理卫生专业人员及其亲属。在存在认知障碍的情况下，这一过程尤其具有挑战性，因为认知障碍往往需要与不同机构进行有效沟通。护理人员经常遇到多重挑战，包括处理痴呆症经历的耻辱感，以及在癌症护理背景下谈判这一问题的额外复杂性。
In this article, we examine the challenges of informal carers supporting someone with dementia and cancer within the United Kingdom. Interviews were conducted with seven informal carers using a narrative approach to examine the construction of their experiences. Our findings demonstrate how informal carers navigate a path through complex cancer treatments and support their relative. A cancer diagnosis often requires multiple treatment visits to an oncology center, and this can be challenging for carers. They find that they need to coordinate and manage both health professionals and their relative in terms of getting access to appropriate services and support. This process can be particularly challenging in the presence of a cognitive impairment that often demands effective communication with different agencies. Carers frequently experienced multiple challenges including dealing with the stigma that is characteristic of the dementia experience and the added complexity of negotiating this within a cancer care context.