Quality of Life for People with Autism: Raising the Standard for Evaluating Successful Outcomes.
Quality of Life for People with Autism: Raising the Standard for Evaluating Successful Outcomes.
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DOI：
10.1111/j.1475-3588.2006.00432.x
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发表时间：
2007-05-01
影响因子：
6.1
通讯作者：
Gutstein, Steven E
中科院分区：
文献类型：
--
作者：
Burgess, Audrey F;Gutstein, Steven E
生活质量（QoL）是衡量有精神和身体健康问题的人的治疗结果的关键指标。然而，很少有研究通过利用现实世界的措施，如就业能力，自给自足和社会支持来衡量治疗成功，来评估自闭症的结果，尽管纵向研究表明自闭症患者的结果很差。利用生活质量指标作为开发治疗和评估自闭症结果的标准是有利的。在简要描述的领域和指标，包括生活质量，本文回顾了文献描述的过程中，自闭症，其次是检查的指标，特别是自闭症患者的生活质量。总之，利用生活质量指标来衡量和评估自闭症患者的结果的模型将被提出。
Quality of Life (QoL) is a critical measure of treatment outcome for people with mental and physical health concerns. However, little research has been conducted toward evaluating outcomes in autism by utilizing real-world measures, such as employability, self-sufficiency, and social support to gauge treatment success, despite longitudinal research that indicates poor outcomes for people with autism. Utilizing QoL indicators as the standard for developing treatments and evaluating outcomes in autism is advantageous. After a brief description of the domains and indicators comprising QoL, this paper reviews the literature describing the course of autism, followed by an examination of indicators which contribute to QoL for people with autism in particular. In conclusion, a model for utilizing QoL indicators to measure and evaluate outcome for people with autism will be proposed.