What do children need to know about dementia? The perspectives of children and people with personal experience of dementia
What do children need to know about dementia? The perspectives of children and people with personal experience of dementia
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DOI：
10.1017/s1041610217002022
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发表时间：
2018-05-01
影响因子：
7
通讯作者：
Richards, Laura
中科院分区：
文献类型：
--
作者：
Baker, Jess R.;Jeon, Yun-Hee;Richards, Laura
背景：痴呆症友好社区的愿景受到公众对痴呆症的认识有限和耻辱的挑战。这项研究的目的是引出利益相关者对教育计划的信息内容的优先考虑，以提高青少年对痴呆症的认识;具体来说，孩子们需要知道什么关于痴呆症？方法：采用访谈和焦点小组的定性调查。有目的的抽样实现了痴呆症经历和参与者特征的最大差异。焦点小组与童子军在9-12岁的社区（n = 22）使用创新的技术，探讨儿童对痴呆症患者的态度。有痴呆症个人经历的参与者是5名早期痴呆症患者; 12名成年主要照顾者; 4名非主要照顾者;以及痴呆症患者的6名孙子。他们被问到什么是重要的儿童了解痴呆症和什么态度，他们可能喜欢的教育计划，赋予。使用NVivo 10进行内容分析。结果：出现的强有力的主题是，儿童需要知道关于痴呆症的全部真相;痴呆症患者是“仍然是人”，这不是痴呆症患者的“错”;痴呆症是不同的，通常是不可预测的每个人。讨论还表明，有必要教育儿童如何与痴呆症患者相处，并欣赏“积极”的关系。结论：儿童是我们未来的公民。为儿童制定具有此信息内容的教育计划可能是消除痴呆症污名和为痴呆症友好社区奠定基础的基础。
Background: The vision for dementia-friendly communities is challenged by limited public awareness and stigma about dementia. The study aim was to elicit stakeholder priorities for the message content of an education program to improve dementia awareness among youth; specifically, what do children need to know about dementia?Methods: A qualitative inquiry using interviews and focus groups was used. Purposive sampling achieved maximum variation in dementia experience and participant characteristics. Focus groups with Scouts in the community aged 9-12 years old (n = 22) used innovative techniques to explore children's attitudes towards people with dementia. Participants with personal experience of dementia were five people with early-stage dementia; 12 adult primary carers; four non-primary carers; and six grandchildren of a person with dementia. They were asked what is important for children to understand about dementia and what attitudes they may like an education program to confer. Content analysis was performed using NVivo10.Results: Strong themes to emerge were that children need to know the whole truth about dementia; that individuals with dementia are "still people," that it is "not the fault" of the person with dementia; and that dementia is different and typically unpredictable for everyone. Discussions also indicated a need to educate children about ways to relate to a person with dementia, and to appreciate "positives" within a relationship.Conclusions: Children are our future citizens. Developing an education program for children with this message content may be fundamental to de-stigmatizing dementia and laying the foundation to dementia-friendly communities.