Health related quality of life of children with calcaneal apophysitis: child & parent perceptions.
Health related quality of life of children with calcaneal apophysitis: child & parent perceptions.
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DOI：
10.1186/s12955-016-0497-4
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发表时间：
2016-06-24
影响因子：
3.6
通讯作者：
Haines TP
中科院分区：
文献类型：
--
作者：
James AM;Williams CM;Haines TP
据报道，临床诊断为跟骨骨骺炎的儿童身体能力受损。患者报告的结局评估测量了日常生活中的条件性特异性干扰水平。本研究的目的是评估和比较儿童和父母对跟骨骨骺炎相关的健康相关生活质量（QOL）的看法。这是一项嵌套在随机比较有效性试验中的纵向重复测量研究。从当地广告和健康环境中的足科医生病例中招募有跟骨骨骺炎症状的儿童（澳大利亚）。儿童和父母在基线、1、2、6和12个月时间点完成牛津踝足儿童问卷（OxAFQ-C）。共招募了133名儿童，其中124名儿童参加了研究，101名儿童在所有五个时间点完成了OxAFQ-C。在各个时间点，儿童和父母之间的物理领域的评分者间可靠性范围为差（0.06）至好（0.77）一致性，鞋类领域的评分者间可靠性范围为差（0.09）至好（0.66）。学校和情感领域都有中度（0.46）到良好（0.77）的一致性。与父母相比，跟骨骨骺炎儿童对健康相关的生活质量影响有不同的看法。父母最初报告的影响大于他们的孩子，但在随访期间有趋同的协议。这些发现表明，在治疗期间，从儿童和父母的角度理解影响是必要的。试验编号：ACTRN12609000696291。
Children with a clinical diagnosis of calcaneal apophysitis reportedly experience impaired physical ability. Patient reported outcome assessments measure the level of conditional specific interference in everyday life. The aim of this study was to assess and compare the child and parent perceptions of health related quality of life (QOL) associated with calcaneal apophysitis. This is a longitudinal repeated measure study nested within a randomized comparative effectiveness trial. Children who had symptoms of calcaneal apophysitis were recruited from local advertising and from the caseload of podiatrists within the health setting (Australia). The Oxford Ankle Foot Questionnaire for Children (OxAFQ-C) was completed at baseline, 1, 2, 6 and 12 month time points by both child and parent. A total of 133 children were recruited and 124 participated in the study with 101 completing the OxAFQ-C at all five time points. The inter-rater reliability between the child and parent for the physical domain ranged between poor (0.06) to good (0.77) agreement, and the footwear domain ranged between poor (0.09) to good (0.66) across the time points. Both the school and emotional domains had moderate (0.46) to good (0.77) agreement. Children with calcaneal apophysitis have differing perceptions of health related QOL impact compared to their parents. Parents initially reported greater impact than their child however there was convergence of agreement over the follow-up period. These findings suggest understanding the impact from both child and parent perspective is imperative during treatment. Trial Number: ACTRN12609000696291.