Definition of a Good Death, Attitudes Toward Death, and Feelings of Interconnectedness Among People Taking Care of Terminally ill Patients With Cancer: An Exploratory Study
Definition of a Good Death, Attitudes Toward Death, and Feelings of Interconnectedness Among People Taking Care of Terminally ill Patients With Cancer: An Exploratory Study
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DOI：
10.1177/1049909119883835
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发表时间：
2019-10-24
影响因子：
1.9
通讯作者：
Torta, Riccardo
中科院分区：
文献类型：
--
作者：
Bovero, Andrea;Gottardo, Francesco;Torta, Riccardo
良好死亡的概念在姑息治疗中至关重要，但它与对死亡的态度和相互联系的感觉之间的关系需要进一步深化。本研究的第一个目的是探讨癌症晚期患者的家庭照顾者（fc）和医疗保健提供者（HCPs）之间良好死亡的概念、对死亡的态度和相互联系的感觉。第二个目的是分析好死概念与对死亡的态度和相互联系的感觉之间的联系。参与者被要求评估良好死亡特征的重要性。为了探讨每个人对死亡的态度和相互联系的感觉，使用了3个开放式问题。样本包括49名参与者：24名（48.98%）fc和25名（51.02%）hcp。超过70%的参与者认为9个好的死亡特征是必不可少的。这些涉及到身体层面（如症状控制）、社会层面（如爱人的存在）、情感层面（如分享情感）和精神层面（如内心平静）。人们发现，良好死亡的重要组成部分，如患者对死亡的认识和接受、死亡的意义、对患者意愿的尊重以及内心的平静，与缺乏对死亡的回避和接受以及相互联系的感觉有关。鉴于FCs和HCPs在提供护理方面的重要性及其对患者死亡过程的影响，有必要反思他们的个人态度和以前的经历如何影响临终患者的护理。
The concept of a good death is crucial in palliative care, but its relationship with attitudes toward death and feelings of interconnectedness needs to be further deepened. The first aim of this study was to explore the concept of good death, attitudes toward death, and feelings of interconnectedness among family caregivers (FCs) and health-care providers (HCPs) of terminally ill patients with cancer. The second aim was to analyze associations of good death concept with attitudes toward death and feelings of interconnectedness. Participants were asked to assess the importance of features that characterize a good death. To explore each person's attitude toward death and feelings of interconnectedness, 3 open questions were used. The sample consisted of 49 participants: 24 (48.98%) FCs and 25 (51.02%) HCPs. Nine good death features were considered essential by more than 70% of participants. These referred to the physical (eg, symptoms control), social (eg, loved ones' presence), emotional (eg, sharing emotions), and spiritual (eg, inner peace) dimensions. Importance attributed to components of a good death such as patient's awareness and acceptance of death, meaning, respect for the patient's wishes, and inner peace were found to be associated with lack of avoidance and acceptance toward death and feelings of interconnectedness. Given the importance of FCs and HCPs in providing care and their impact on the patients' dying process, it is necessary to reflect upon how their personal attitudes and previous experiences influence the care of dying patients.