A qualitative study of anterior resection syndrome: the experiences of cancer survivors who have undergone resection surgery
A qualitative study of anterior resection syndrome: the experiences of cancer survivors who have undergone resection surgery
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DOI：
10.1111/j.1365-2354.2005.00647.x
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发表时间：
2006-07-01
影响因子：
2.1
通讯作者：
Faithfull, S.
中科院分区：
文献类型：
--
作者：
Desnoo, L.;Faithfull, S.
本研究旨在探讨个体如何在直肠癌手术切除后恢复和适应以及手术后发生的综合征。这种综合征，“前切除综合征”，包括频率，紧迫性，碎片和失禁的粪便，并认为发生在90%的患者谁接受了这种类型的手术。在这方面进行了定性研究很少，这项研究增加了目前的生活质量数据，并探讨了护士可以用来帮助病人的支持性护理策略。本研究采用扎根理论的研究方法和深度访谈来探讨患者的经验。参与者是从英国的一个癌症单位招募的。参与者是从2001年至2002年接受手术的27名患者的总人口样本中招募的。根据排除疾病进展患者的合格标准，在手术后1年确定了7例患者。访谈被用来探讨综合征的经验。三个类别被确定为：适应身体变化，心理适应和耻辱。贯穿所有这些类别的第二个主题是自信和正常的感觉。虽然身体变化是手术的结果，但大多数参与者描述了在恢复期间控制和管理症状的困难。尽管肠道问题在社会上是耻辱的，但发展一种哲学立场对管理缺乏控制和恢复正常状态很重要。关于一系列管理身体症状的策略的信息有助于提供支持性护理。了解患者往往依赖于不适当的管理策略，并不愿意讨论症状是很重要的。专科护士在癌症治疗后的慢性症状管理中提供支持性护理。
This study aimed to explore how individuals recovered and adapted following surgical resection of their rectal cancer and the syndrome that occurs as a consequence of this operation. This syndrome, 'anterior resection syndrome', consists of frequency, urgency, fragmentation and incontinence of faeces, and is thought to occur in 90% of patients who have received this type of surgery. Little qualitative research has been undertaken in this area, and this study adds to current quality of life data and explores supportive care strategies that nurses could use to assist patients. This study uses a grounded theory approach and in-depth interviews to explore patient's experiences. Participants were recruited from a cancer unit within the UK. Participants were recruited from a total population sample of 27 patients who had received surgery from 2001 to 2002. Following eligibility criteria to exclude those who had disease progression, seven patients were identified 1 year following surgery. Interviews were used to explore the experience of the syndrome. Three categories were identified: adapting to the physical changes, psychological adaptation and stigma. A secondary theme, running throughout all these categories, was the feeling of confidence and normality. Although the physical changes were expected as a consequence of surgery, most participants described the difficulty in controlling and managing symptoms in their period of recovery. Developing a philosophical stance was important in managing the lack of control and returning to perceived normality, despite the social stigma of bowel problems. Information on a range of strategies to manage physical symptoms is helpful in providing supportive care. Understanding that patients often rely on inappropriate strategies for management and are reluctant to discuss symptoms is important. The specialist nurse has a role in providing supportive care in managing chronic symptoms following cancer treatment.