The Importance of Starting With Goals in N-of-1 Studies

The Importance of Starting With Goals in N-of-1 Studies
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DOI:
10.3389/fdgth.2020.00003
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发表时间:
2020-05-22
影响因子:
--
通讯作者:
Fogarty, James
Fogarty, James
中科院分区:
其他
文献类型:
--
作者:
Munson, Sean A.;Schroeder, Jessica;Fogarty, James

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N-1-1工具提供了支持人们监测健康和确定个性化健康管理策略的潜力。我们认为,启发个性化目标和自定义跟踪以支持这些目标是自我跟踪的关键但不足和支持的方面。我们回顾了各种慢性条件和自我追踪设计(例如,自我监控,相关分析,自我实验)的自我追踪示例。这些例子共同表明,未能引起目标如何导致跟踪程序无效,合作中的故障(例如,在患者和提供者之间,家庭之间),负担增加,甚至鼓励行为与人的目标相反的设计。我们讨论了启发和完善目标,根据这些目标脚手架的跟踪程序的潜在技术,并以推动个人目标的方式提出的结果,同时保留个人代理机构。然后,我们描述了公开挑战,包括如何调和竞争目标并支持目标的演变。
N-of-1 tools offer the potential to support people in monitoring health and identifying individualized health management strategies. We argue that elicitation of individualized goals and customization of tracking to support those goals are a critical yet under-studied and under-supported aspect of self-tracking. We review examples of self-tracking from across a range of chronic conditions and self-tracking designs (e.g., self-monitoring, correlation analyses, self-experimentation). Together, these examples show how failure to elicit goals can lead to ineffective tracking routines, breakdowns in collaboration (e.g., between patients and providers, among families), increased burdens, and even designs that encourage behaviors counter to a person's goals. We discuss potential techniques for eliciting and refining goals, scaffolding an appropriate tracking routine based on those goals, and presenting results in ways that advance individual goals while preserving individual agency. We then describe open challenges, including how to reconcile competing goals and support evolution of goals over time.