Variations in quality of life among caregivers of food allergic children
Variations in quality of life among caregivers of food allergic children
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DOI：
10.1016/j.anai.2010.08.003
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发表时间：
2010-10-01
影响因子：
5.9
通讯作者：
Gupta, Ruchi S.
中科院分区：
文献类型：
--
作者：
Springston, Elizabeth E.;Smith, Bridget;Gupta, Ruchi S.
背景：儿童食物过敏在美国是一个严重的健康问题。随着受影响儿童数量的增加，越来越多的照顾者承担起管理孩子食物过敏的责任。目的：更好地了解儿童食物过敏对照顾者生活质量的影响。方法：2008年1月1日至2009年1月31日，作为一项大型项目的一部分，研究了食物过敏儿童护理人员的知识、态度和信念，对美国各地的大量护理人员进行了食物过敏生活质量-父母负担问卷调查。对研究结果进行分析，以描述照顾者的生活质量，并检查食物过敏表现对参与者反应的影响。结果：收集了1126名护理人员的数据。食物过敏对照顾者生活质量的影响差异很大，只有一个例外：照顾者一直报告说，由于孩子的食物过敏，他们受到社交限制的困扰。在许多调查项目中，对食物过敏更了解的护理人员，以及过去一年中孩子因食物过敏去过急诊室、有多种食物过敏或对特定食物过敏的护理人员，生活质量差的可能性要大得多。结论：以往的研究强调了食物过敏对护理者生活质量的负面影响。本研究说明了照顾食物过敏儿童的不同经验，以及在评估父母负担时考虑疾病表现的重要性。[j] .中华医学杂志。2010;35(5):557 - 557。
Background: Pediatric food allergy is a serious health problem in the United States. As the number of affected children increases, more caregivers are charged with the responsibility of managing their child's food allergy.Objective: To better understand the impact of pediatric food allergy on caregiver quality of life.Methods: As part of a larger project examining the knowledge, attitudes, and beliefs of caregivers with food allergic children, the Food Allergy Quality of Life-Parental Burden questionnaire was administered to a large sample of caregivers across the United States from January 1, 2008, to January 31, 2009. Findings were analyzed to describe caregiver quality of life and to examine the impact of the manifestation of food allergy on participant response.Results: Data were collected from 1,126 caregivers. The impact of food allergy on caregiver quality of life varied widely with 1 exception: caregivers consistently reported being troubled by social limitations resulting from their child's food allergy. Poor quality of life was significantly more likely on a number of survey items among caregivers more knowledgeable about food allergy and among caregivers whose children had been to the emergency department for food allergy in the past year, had multiple food allergies, or were allergic to specific foods.Conclusions: Previous research has emphasized the negative impact of food allergy on caregiver quality of life. This study illustrates the diverse experience of caring for a child with food allergy and the importance of considering the manifestation of disease when evaluating parental burden. Ann Allergy Asthma Immunol. 2010;105:287-294.