Health-related quality of life measurement in pediatric clinical practice: an appraisal and precept for future research and application.
Health-related quality of life measurement in pediatric clinical practice: an appraisal and precept for future research and application.
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DOI：
10.1186/1477-7525-3-34
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发表时间：
2005-05-16
影响因子：
3.6
通讯作者：
Lane, Mariella M
中科院分区：
文献类型：
--
作者：
Varni, James W;Burwinkle, Tasha M;Lane, Mariella M
健康相关生活质量 (HRQOL) 测量已成为临床试验、临床实践改进策略以及医疗保健服务研究和评估中的重要健康结果。 HRQOL 测量也越来越多地被提议用于临床实践环境中，以指导治疗决策。在成人使用 HRQOL 测量的环境中，医生报告此类测量是有用的，一些医生根据患者对此类仪器的报告改变治疗方案，患者自己普遍认为这些仪器有帮助。然而，缺乏评估 HRQOL 测量在儿科临床实践中的临床效用的研究。本文对文献进行了最新回顾，并提出了儿科 HRQOL 测量在儿科临床实践中应用的指导原则。在儿科医疗保健环境中利用 HRQOL 测量可以促进患者与医生的沟通，提高患者/家长的满意度，识别隐藏的疾病，并协助临床决策。展示儿科 HRQOL 测量在识别最需要的儿童方面的效用，同时展示提供及时、有针对性的干预措施来满足这些需求的成本优势，可能最终为将 HRQOL 测量纳入儿科临床实践提供动力。
Health-related quality of life (HRQOL) measurement has emerged as an important health outcome in clinical trials, clinical practice improvement strategies, and healthcare services research and evaluation. HRQOL measures are also increasingly proposed for use in clinical practice settings to inform treatment decisions. In settings where HRQOL measures have been utilized with adults, physicians report such measures as useful, some physicians alter their treatment based on patient reports on such instruments, and patients themselves generally feel the instruments to be helpful. However, there is a dearth of studies evaluating the clinical utility of HRQOL measurement in pediatric clinical practice. This paper provides an updated review of the literature and proposes a precept governing the application of pediatric HRQOL measurement in pediatric clinical practice. Utilizing HRQOL measurement in pediatric healthcare settings can facilitate patient-physician communication, improve patient/parent satisfaction, identify hidden morbidities, and assist in clinical decision-making. Demonstrating the utility of pediatric HRQOL measurement in identifying children with the greatest needs, while simultaneously demonstrating the cost advantages of providing timely, targeted interventions to address those needs, may ultimately provide the driving force for incorporating HRQOL measurement in pediatric clinical practice.