Application of the truth and reconciliation model to meaningfully engage deaf sign language users in the research process.
Application of the truth and reconciliation model to meaningfully engage deaf sign language users in the research process.
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DOI：
10.1037/cdp0000445
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发表时间：
2023-01
影响因子：
3.3
通讯作者：
Wilkins AM
中科院分区：
文献类型：
--
作者：
Anderson ML;Riker T;Wilkins AM
美国聋人社区是最缺乏代表性的公共卫生群体之一，这是一个使用美国手语进行交流的少数群体，人数超过50万。由于难以接近的研究程序和对研究人员的不信任，对聋人健康结果的研究明显缺乏，这源于对聋人（即听力障碍）的历史虐待。遵循真相与和解模式，我们在2016年10月至11月期间在新英格兰举办了三次聋人社区论坛。我们邀请与会者分享他们在研究领域的经验，并就研究人员如何更好地将聋人纳入他们的研究提出建议。一组精选的听力研究人员作为研究界的代表，代表这个社区发表正式道歉。论坛与会者（n = 22； 5%的种族/少数民族；59%的女性）强调了以下主题：在一般人群样本中进行的研究不是聋人可以或将被纳入的活动；普遍不信任听力正常的人，包括听力研究人员；研究人员经常无法将研究结果反馈给聋人社区或整个社区；研究人员倾向于直接从聋人参与者提供的数据中受益，而不做任何后续的努力来回馈社会或提供有用的干预。许多不公正和形式的虐待仍在继续；因此，我们认识到，我们的团队为促进研究界和聋人社区之间的公开对话所做的努力必须是一个持续的、反复的实践。
One of the most underrepresented public health populations is the U.S. Deaf community – a minority group of 500,000+ individuals who communicate using American Sign Language. Research on Deaf health outcomes is significantly lacking due to inaccessible research procedures and mistrust of researchers that stems from historical mistreatment of Deaf people (i.e., Audism). Following the Truth and Reconciliation Model, we hosted three Deaf community forums between October and November 2016 across New England. We invited attendees to share their experiences in the research world and make recommendations about how researchers can better include Deaf people in their studies. A select group of hearing researchers served as representatives of the research community and to issue a formal apology on behalf of this community. Forum attendees (n = 22; 5% racial/ethnic minority; 59% female) emphasized the following themes: research conducted within general population samples is not an activity in which Deaf people can or will be included; a general mistrust of hearing people, including hearing researchers; researchers’ frequent failure to communicate study results back to the Deaf community or the community-at-large; and a tendency of researchers to directly benefit from data provided by Deaf participants, without making any subsequent efforts to return to the community to give back or provide useful intervention. Many injustices and forms of mistreatment are still ongoing; therefore, we recognize that our team’s efforts to foster an open dialogue between the research community and the Deaf community must be an ongoing, iterative practice.
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影响因子：
1.5
作者：
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通讯作者：
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