By Queer People, For Queer People: : FOLX, Plume, and the Promise of Queer UX

By Queer People, For Queer People: : FOLX, Plume, and the Promise of Queer UX
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作者:酷儿人,献给酷儿人:FOLX、Plume 和酷儿用户体验的承诺

DOI:
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发表时间:
2021
期刊:
ACM International Conference on Design of Communication
影响因子:
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通讯作者:
Melissa Stone
Melissa Stone
中科院分区:
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文献类型:
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作者:
Zachary Beare;Melissa Stone

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本研究报告介绍了两个移动医疗平台——plume和folx——的双重案例研究,这两个平台为患者用户提供性别确认激素治疗(GAHT)。这篇论文认为,除了简单地增加对GAHT的访问之外,这些平台还承诺提供一种奇怪的用户体验,并且他们设计了通信和平台交互来服务于这一目标。这篇论文详细阐述了这些移动健康平台所做出的几个突出的设计选择,并将其理论化,包括以临床医生和平台设计师的酷儿身份为中心,促进用户的声音,并为个人回馈社区创造机会。该论文认为,这些平台提供了一种关于医疗保健可能是什么样子的奇怪愿景,一种不太关注个人获得护理的方式,而更多地关注社区的支持和庆祝。论文总结了对未来研究的启示,以及对在线和实体医疗保健提供者的启示。
This research paper presents a dual case study of two mHealth platforms—Plume and FOLX-which provide patient-users access to gender-affirming hormone therapy (GAHT). The paper argues that beyond simply increasing access to GAHT, these platforms promise a queer user experience and that they design communication and platform interactions in service of that goal. The paper details and theorizes several of the prominent design choices made by these mHeath platforms, including centering the queerness of clinicians and platform designers, promoting the voices of users, and creating opportunities for individuals to give back to their community. The paper argues that these platforms offer a queer vision of what healthcare might look like, one focused less on individual access to care and more on community support and celebration. The paper concludes with implications for future research and for both online and brick and mortar healthcare providers.