Engaging, Recruiting, and Retaining Black Men Who Have Sex With Men in Research Studies: Don't Underestimate the Importance of Staffing-Lessons Learned From HPTN 061, the BROTHERS Study

Engaging, Recruiting, and Retaining Black Men Who Have Sex With Men in Research Studies: Don't Underestimate the Importance of Staffing-Lessons Learned From HPTN 061, the BROTHERS Study
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DOI:
10.1097/phh.0000000000000025
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发表时间:
2014-11-01
影响因子:
3.3
通讯作者:
Wheeler, Darrell P.
Wheeler, Darrell P.
中科院分区:
医学4区
文献类型:
--
作者:
Magnus, Manya;Franks, Julie;Wheeler, Darrell P.

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背景:在美国,艾滋病毒/艾滋病仍然主要影响男男性行为者(MSM),其中黑人男男性行为者的感染率高得不成比例。目的:本研究的目的是确定可能影响黑人男同性恋者参与和保留艾滋病研究的因素。设计和参与者:这是一项多地点、前瞻性、观察性研究(HIV预防试验网络061,BROTHERS)的研究实施的定性评估,该研究在美国6个城市招募了1553名黑人男同性恋者。本次评估的数据收集包括从每个站点收集的书面结构化调查,描述站点特征,包括工作人员和组织结构,对站点标准操作程序和工作计划的审查;与站点协调员进行了半结构化的关键信息访谈,以描述人员配置,站点级别的因素促进或阻碍有效的社区参与,研究招募和保留。从已完成的调查和现场标准操作程序中收集的数据进行整理,并由2名独立审稿人对关键信息提供者访谈的记录进行主题编码。结果:从数据中出现了几个关键主题,包括将被研究的社区成员纳入工作人员的重要性,支持包容性人员配置的机构招聘实践,为研究实施培养支持性工作环境,以及研究机构与社区之间的持续关系。结论:本研究强调了人员配置在黑人男男性行为者研究中的重要性。研究者应考虑在研究设计期间和准备开始研究活动时,人员配备和组织结构如何影响实施。对社区参与的持续监测可以为参与提供信息并改进参与方法,确保文化相关性,同时消除参与的障碍。
Context: HIV/AIDS in the United States continues to primarily impact men who have sex with men (MSM), with disproportionately high rates among black MSM. Objective: The purpose of this study was to identify factors that may influence engagement and retention of black MSM in HIV research. Design and Participants: This was a qualitative evaluation of study implementation within a multisite, prospective, observational study (HIV Prevention Trials Network 061, BROTHERS) that enrolled 1553 black MSM in 6 cities throughout the United States. Data collection for this evaluation included a written, structured survey collected from each of the sites describing site characteristics including staff and organizational structure, reviews of site standard operating procedures, and work plans; semistructured key informant interviews were conducted with site coordinators to characterize staffing, site-level factors facilitating or impeding effective community engagement, study recruitment, and retention. Data from completed surveys and site standard operating procedures were collated, and notes from key informant interviews were thematically coded for content by 2 independent reviewers. Results: Several key themes emerged from the data, including the importance of inclusion of members of the community being studied as staff, institutional hiring practices that support inclusive staffing, cultivating a supportive working environment for study implementation, and ongoing relationships between research institutions and community. Conclusions: This study underscores the importance of staffing in implementing research with black MSM. Investigators should consider how staffing and organizational structures affect implementation during study design and when preparing to initiate study activities. Ongoing monitoring of community engagement can inform and improve methods for engagement and ensure cultural relevance while removing barriers for participation.