Fathers' reflections on parenting young children with type 1 diabetes
Fathers' reflections on parenting young children with type 1 diabetes
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DOI：
10.1097/00005721-200601000-00007
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发表时间：
2006-01-01
影响因子：
2.4
通讯作者：
Bayard, M
中科院分区：
文献类型：
--
作者：
Sullivan-Bolyai, S;Rosenberg, R;Bayard, M
目的：描述父亲养育和管理患有I型糖尿病的幼儿的经验。设计和方法：这项定性的描述性研究使用了16个开放式的深度访谈，访问了14个有目的地选择、参与、受过教育、有稳定工作的父亲，他们的父亲年龄在10岁以下。这些父亲被要求描述他们对初始诊断的看法，他们是如何学习糖尿病护理的，他们的日常护理和育儿经历，以及他们在日常管理中使用的策略。结果：总体主题是“从悲伤到行动”，出现了六种类型：(1)“震惊和敬畏”(确诊后)，(2)对诊断和学习糖尿病护理的快速反应：“忍住它并做它”，(3)“保持在循环中”(实践糖尿病管理的技能、任务和责任)，(4)“护理伙伴关系”(标签团队或共同养育)，(5)积极参与(积极参与孩子的日常护理，并从参与护理中受益)，(6)糖尿病患者的生活咒语：儿童第一，糖尿病第二。临床意义：从事糖尿病儿童工作的护士可以利用这项研究的结果，更好地了解父亲在照顾这些孩子中的作用。父亲们强调了练习糖尿病护理相关任务的重要性，以提高他们在独自照顾孩子时的自信心。他们管理孩子慢性病的实践和哲学策略最近被纳入了针对新诊断为1型糖尿病的儿童的父母导师干预。
PURPOSE: To describe fathers' experiences in parenting and managing the care of their young children with type I diabetes.DESIGN AND METHODS: This qualitative descriptive study used 16 open-ended, in-depth interviews with 14 purposively selected, involved, educated, stably employed fathers of 15 children younger than 10 years old. The fathers were asked to describe their perspective of the initial diagnosis, how they learned diabetes care, their day-to-day care and parenting experiences, and what strategies they used in the day-to-day management. Data were managed using NVivo software and analyzed using principles of naturalistic inquiry and qualitative content analysis.RESULTS: The overarching theme was "From sadness to action," with six categories emerging: (1) "shock and awe" (after diagnosis), (2) quick response to the diagnosis and learning diabetes care: "suck it up and do it," (3) "staying in the loop" (practicing the skills, tasks, and responsibilities of diabetes management), (4) "partnerships in care" (tag teaming or co-parenting), (5) active participation (being actively involved in their children's day-to-day care and benefiting from participating in this care), and (6) mantra for living with diabetes: child first, diabetes second.CLINICAL IMPLICATIONS: Nurses working with children with diabetes can use the results of this study to better understand the role of fathers in the care of these children. Fathers underscored the importance of practicing diabetes care-related tasks to improve their confidence when caring for children alone. Their practical and philosophical strategies for managing their children's chronic illness have recently been incorporated into a parent mentor intervention for children newly diagnosed with type 1 diabetes.