Family members' perceived needs for bereavement follow-up
Family members' perceived needs for bereavement follow-up
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DOI：
10.1016/j.jpainsymman.2007.02.039
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发表时间：
2008-01-01
影响因子：
4.7
通讯作者：
Friedrichsen, Maria
中科院分区：
文献类型：
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作者：
Milberg, Anna;Olsson, Eva-Carin;Friedrichsen, Maria
姑息治疗并不随着病人的死亡而结束，许多姑息治疗服务机构还为死者家属提供具体的后续服务。本研究的目的是量化感知的丧亲之痛需求并定性描述这些需求。研究设计是横断面的，目标是患者死亡后3到9个月的家庭成员。248名家庭成员做出了回应。（回复率66%），以邮寄问卷与Likert型和开放式的问题。开放式问卷的回答采用显性内容分析，定量部分采用描述性统计。分析显示，大约一半的家庭成员表示需要对丧亲之痛进行后续跟踪。大多数人倾向于在自己家里与患者及其家人接触最多的工作人员进行个人会面。家庭成员想谈谈在姑息治疗阶段发生的事情（例如，病人是否遭受了痛苦），以及他们的现状，他们的孤独感和未来。后续程序使家庭成员体验到被承认为有自己需要的人的感觉，对于家庭成员的内疚感也很有价值。研究结果进行了讨论，叙事理论，意义为基础的应对，和双处理模式的丧亲之痛，并设计后续程序。
Palliative care does not end with the death of the patient, and many palliative care services offer specific follow-up services for the bereaved. The aims of this study were to quantitate perceived bereavement needs and to qualitatively describe these needs. The study design was cross-sectional and targeted family members three to nine months after the patient's death. Two hundred and forty-eight family members responded. (response rate 66%) to a postal questionnaire with Likert-type and open-ended questions. The responses to the open-ended items were analyzed with manifest content analysis, and the quantitative part was analyzed with descriptive statistics. The analysis showed that about half of the family members expressed a need for bereavement follow-up. A majority favored a personal meeting preferably in their own home, with the staff member who had had the most contact with the patient and the family. The family members wanted to talk about what had happened during the palliative phase (e.g., if the patient had suffered or not), and also about their present situation, their feelings of loneliness, and the future. I he follow-up procedure made the family member experience a feeling of being recognized as a person with their own needs and was also valuable with regard to the family members' feelings of guilt. The findings are discussed in relation to narrative theory, meaning-based coping, and the dual process model of coping with bereavement, and designing follow-up procedures.