How an ordeal becomes the norm: A qualitative exploration of experiences of self-cannulation in male home haemodialysis patients
How an ordeal becomes the norm: A qualitative exploration of experiences of self-cannulation in male home haemodialysis patients
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DOI：
10.1111/bjhp.12303
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发表时间：
2018-09-01
影响因子：
7.9
通讯作者：
Wearden, Alison
中科院分区：
文献类型：
--
作者：
Moore, Currie;Majeed-Ariss, Rabiya;Wearden, Alison
目标尽管家庭血液透析 (HHD) 具有显着的健康和社会心理益处，但对于慢性肾病患者来说，它仍然是一种未得到充分利用的透析方式。自我插管，即患者插入自己的针头进行透析，是 HHD 的关键组成部分。最近的研究表明，自我插管的前景对患者来说是一个障碍，但很少有研究探讨为什么会出现这种情况。本研究的目的是探讨男性 HHD 患者对自我插管的经历和态度。设计采用定性方法收集英国肾脏中心有经验的 HHD 患者的深入观点。方法对 8 名男性 HHD 患者（HHD 持续时间：12-55 个月）进行半结构化访谈。在采访中，研究人员引出了参与者自我插管的生活经历。主题包括自我插管的决定以及自我插管对患者的影响。使用解释性现象学分析对收集的数据进行分析。结果这项研究的结果阐明了自我插管如何从一种折磨变成这些参与者生活中的常态的过程。这些采访的中心主题是，成为一个自我插管的人是一个过程。”讨论了与这一中心主题相关的三个高级主题：“获得控制”、“建立信心”和“成为常态”。 结论 这项研究的结果表明，一些患者最初对自我插管的恐惧是可以克服的。这些发现使医疗保健专业人员和患者能够更好地了解自我插管的患者如何概念化它及其在心理和身体健康中的作用。
ObjectivesDespite home haemodialysis (HHD) being associated with significant health and psychosocial benefits, it remains an under-utilized dialysis modality for people with chronic kidney disease. Self-cannulation, where patients insert their own needles for dialysis, is a key component of HHD. Recent research suggests that the prospect of self-cannulation is a barrier for patients, but there is little research which examines why this is the case. The aim of this study was to explore male HHD patients' experiences and attitudes towards self-cannulation.DesignQualitative methods were adopted to gather in-depth views from experienced HHD patients from a UK renal centre.MethodsSemi-structured interviews were conducted with eight male HHD patients (HHD duration: 12-55months). During the interview, the researcher elicited participants' lived experience of self-cannulation. Topics included the decision to self-cannulate and the impact of self-cannulation on the patient. The data collected were analysed using interpretative phenomenological analysis.ResultsThe findings from this study elucidate the process of how self-cannulation changed from an ordeal to the norm in these participants' lives. The central theme from these interviews is that becoming a person who self-cannulates is a process'. Three super-ordinate themes were discussed that relate to this central theme: gaining control', building confidence', and becoming the norm'.ConclusionsThe findings from this study suggest that some patients' initial fears of self-cannulation can be overcome. These findings offer health care professionals and patients alike a greater understanding of how patients who self-cannulate conceptualize it and its role in their mental and physical health.