Engagement, Exploitation, and Human Intracranial Electrophysiology Research.
Engagement, Exploitation, and Human Intracranial Electrophysiology Research.
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参与、利用和人类颅内电生理学研究。
DOI：
10.1007/s12152-022-09502-1
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发表时间：
2022
期刊：
影响因子：
1.4
通讯作者：
Feinsinger,Ashley
中科院分区：
文献类型：
--
作者：
Pham,MichelleT;Pouratian,Nader;Feinsinger,Ashley
出于开发的考虑，我们认为参与者参与基本的人类颅内电生理学研究的重要性。这项研究利用了独特的神经外科机会来更好地了解人类大脑的复杂系统，但它也使参与者暴露在没有立即治疗意图的额外风险中。我们认为，理解参与者的价值观并将他们的观点纳入研究过程可能(i)有助于确定研究实践以及由此产生的风险和利益分配是否构成剥削，以及在多大程度上构成剥削；（ii）有助于建立一个真正响应参与者价值观的大脑研究范式。更广泛地说，我们强调在非治疗性脑研究中关注参与者兴趣的重要性。
Motivated by exploitation concerns, we argue for the importance of participant engagement in basic human intracranial electrophysiology research. This research takes advantage of unique neurosurgical opportunities to better understand complex systems of the human brain, but it also exposes participants to additional risks without immediate therapeutic intent. We argue that understanding participant values and incorporating their perspectives into the research process may (i) help determine whether and to what extent research practices and the resulting distributions of risks and benefits constitute exploitation and (ii) contribute to building a brain research paradigm that is genuinely responsive to participant values. More broadly, we highlight the importance of paying attention to participant interests in non-therapeutic brain research.