Molding influences of prematurity: Interviews with adults born preterm.
Molding influences of prematurity: Interviews with adults born preterm.
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DOI：
10.1016/j.earlhumdev.2022.105542
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发表时间：
2022-03
影响因子：
2.5
通讯作者：
Sullivan, Mary C.
中科院分区：
文献类型：
--
作者：
D'Agata, Amy L.;Kelly, Michelle;Green, Carol E.;Sullivan, Mary C.
关键词：
在过去的几十年里，巨大的医学进步支持了年轻和患病新生儿的生存。关于早产后的健康和发育结果存在大量的定量研究，然而，有限的已发表文献探讨了这种经历对幸存者意味着什么。目的是描述、解释和理解早产的成年人如何看待早产对他们生活的影响。定性专题分析。半结构化的采访进行了33名成年人早产的RHODALTH研究，一个纵向早产出生队列。高和低的早期生活的医疗和环境风险的参与者的横截面进行了采访。数据进行了分析，使用潜在主题分析的建构主义方法。从这些数据中，我们发现了三个主题：1）我的父母称我为他们的奇迹，2）这没什么大不了的，我和其他人一样，3）我克服了很多困难。主题代表了一个连续的经验，从积极到中性到消极。家庭，教育，朋友和健康的共同生活经历是有助于阐明参与者如何为他们的早产赋予意义的子主题。意义与参与者如何看待他们的健康，学习和朋友相比，同龄人。对早产和逆境的看法受到父母和家庭在共同的故事和行动中表现早产的方式的影响。这些发现应该为未来对早产儿成年幸存者的研究提供信息。与会者确定了对支持和宣传的持续需求，特别是来自医疗保健和教育界的需求。
Tremendous medical advancements over the last several decades have supported the survival of younger and sicker newborns. Substantial quantitative research exists about health and developmental outcomes following preterm birth, however, limited published literature has explored what this experience means to the survivors. The purpose was to describe, interpret and understand how adults born preterm perceive prematurity to have affected their lives. Qualitative thematic analysis. Semi-structured interviews were conducted with 33 adults born preterm from the RHODĒ Study, a longitudinal preterm birth cohort. A cross-section of participants with high and low early life medical and environmental risk was interviewed. Data were analyzed using a constructionist method of latent theme analysis. From the data, 3 themes were identified: 1) My parents call me their miracle, 2) It’s not a big deal, I’m the same as everyone else, 3) I’ve overcome a lot. Themes represent a continuum of experience, from positive to neutral to negative. Common life experiences of family, education, friends, and health are subthemes that help to illuminate how participants assign meaning to their prematurity. Meaning was linked to how typical or not participants perceive their health, learning and friends compared to peers. Perceptions about prematurity and adversity are influenced by the ways parents and families represent prematurity in shared stories and actions. These findings should inform future research with adult survivors of prematurity. Participants identified ongoing need for support and advocacy, particularly from healthcare and education communities.
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影响因子：
2.5
作者：
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DOI：
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