The tinkering m-patient: Co-constructing knowledge on how to live with type 1 diabetes through Facebook searching and sharing and offline tinkering with self-care
The tinkering m-patient: Co-constructing knowledge on how to live with type 1 diabetes through Facebook searching and sharing and offline tinkering with self-care
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DOI：
10.1177/1363459318800140
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发表时间：
2020-03-01
期刊：
影响因子：
2.1
通讯作者：
Kingod, Natasja
中科院分区：
文献类型：
--
作者：
Kingod, Natasja
患有 1 型糖尿病的丹麦成年人重视通过社交媒体平台 Facebook 进行点对点互动，将其视为快速交流慢性病日常基本自我护理知识的一种方式。在这项行为学研究中，我跟随线下的受访者进入线上和线下的社交维度，基于身体、技术和日常生活之间的实际实验和协商，探索他们如何使用 Facebook 来交流自我保健知识。当对如何进行日常自我护理有疑问时，患有 1 型糖尿病的丹麦成年人会在 Facebook 上寻求灵感和同伴支持。在线搜索和分享以及线下自我保健的协同过程产生了以人为本的知识，了解如何根据个人需求和独特的日常生活与疾病相处。 Facebook 可以被视为生物社会性的一个新兴空间，通过该空间，同伴们可以根据日常和持续的自我护理的实用经验共同构建有关如何自我护理的知识。
Danish adults with type 1 diabetes value peer-to-peer interaction through the social media platform Facebook as a way to quickly exchange knowledge on essential everyday self-care for chronic illness. In this praxiographic study, following informants into online and offline social dimensions, I explore how they use Facebook to exchange self-care knowledge based on practical experiments and negotiations between bodies, technologies and daily lives. When in doubt about how to self-care on a daily basis, Danish adults with type 1 diabetes look to Facebook for inspiration and peer support. A synergistic process of online searching and sharing and offline tinkering with self-care generates person-centred knowledge about how to live with illness that is situated to individual needs and unique daily lives. Facebook can be viewed as an emergent space for biosociality through which knowledge about how to self-care become co-constructed by peers based on their pragmatic experiences of self-care on a daily and ongoing basis.