Psychosocial consequences for partners of patients after total laryngectomy and for the relationship between patients and partners

Psychosocial consequences for partners of patients after total laryngectomy and for the relationship between patients and partners
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DOI:
10.1016/j.oraloncology.2014.12.008
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发表时间:
2015-04-01
期刊:
影响因子:
4.8
通讯作者:
de Jong, R. J. Baatenburg
de Jong, R. J. Baatenburg
中科院分区:
医学2区
文献类型:
--
作者:
Offerman, M. P. J.;Pruyn, J. F. A.;de Jong, R. J. Baatenburg

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目的:本研究探讨了全喉切除术(TL)对伴侣以及喉切除者与伴侣关系的长期影响。方法:151名喉切除者和144名伴侣完成了问卷调查,评估TL对伴侣的心理社会影响(生活质量、焦虑和抑郁、失控、恐惧、绝望、创伤后成长、婚姻负担)和配偶关系(配偶关系质量的变化和家庭中对疾病讨论的开放性)。相当多的喉切除者的伴侣经历了TL后果的心理社会影响,特别是在社交生活(35%)和性关系(31%)方面。此外,其他人忽视他们喉切除的生活伴侣的倾向,对一半以上的伴侣产生了负面影响。在大约20%的伴侣中发现了临床水平的焦虑和抑郁。TL的后果对超过30%的喉切除者和伴侣的性功能产生了负面影响,对大约五分之一的喉切除者和伴侣的沟通产生了负面影响,对三分之一的喉切除者的伴侣的依赖感产生了负面影响。TL对喉切除者的伴侣的心理社会生活和配偶关系有相当大的影响。这项探索性研究的结果为结构性筛选提供了基础,不仅对患者,而且对他们的伴侣。性和亲密关系应该是这种筛选的一部分。(C)2015爱思唯尔有限公司版权所有。
Objective: This study explored the long-term impact of a Total Laryngectomy (TL) on the partner and on the relationship between laryngectomees and their partners.Methods: 151 laryngectomees and 144 partners completed questionnaires assessing the psychosocial impact of a TL on the partner (quality of life, anxiety and depression, loss of control, fear, hopelessness, post-traumatic growth, caregiving burden) and on the spousal relationship (change in the quality of the spousal relationship and openness to discussion of the illness in the family).Results: A considerable number of partners of laryngectomees experience a psychosocial impact of the consequences of the TL, specifically on their social life (35%) and on their sexual relationship (31%). Also, the tendency of other people to neglect their laryngectomized life companion, affects more than half of the partners negatively. Clinical levels of anxiety and depression were found in around 20% of the partners.The consequences of a TL has a negative change on the sexual functioning for more than 30% of both laryngectomees and partners, the communication for around one fifth of both laryngectomees and partners, and feelings of dependency of the partner for one third of the laryngectomees.Conclusions: A TL has a considerable impact on the psychosocial life of partners of laryngectomees and on the spousal relationship. The findings of this explorative study sets the stage for structural screening on the need for support, not only for patients, but also for their partners. Sexuality and intimacy should be part of this screening. (C) 2015 Elsevier Ltd. All rights reserved.