"A Fine Line That We Walk Every Day": Self-Care Approaches Used by Family Caregivers of Persons with Dementia
"A Fine Line That We Walk Every Day": Self-Care Approaches Used by Family Caregivers of Persons with Dementia
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DOI：
10.1080/01612840.2018.1499156
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发表时间：
2019-03-04
影响因子：
2.1
通讯作者：
Rose, Karen M.
中科院分区：
文献类型：
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作者：
Anderson, Joel G.;Hundt, Elizabeth;Rose, Karen M.
患有阿尔茨海默病和相关痴呆症（ADRD）的个体经常表现出行为和心理上的痛苦症状，这些症状可能会导致其家庭照顾者所经历的压力。这种压力会增加家庭照顾者的压力水平，降低生活质量，这会对照顾者和ADRD患者的身体健康和福祉产生负面影响。本研究以ADRD患者之家庭照顾者所撰写之部落格为研究对象，探讨这些照顾者所采取之自我照顾策略。使用定性专题分析，确定了与ADRD患者护理人员使用的自我护理方法相关的七个主题：（1）健康和保健;（2）利他主义和行动主义;（3）回忆和遗产建设;（4）社会支持;（5）信息交流;（6）组织和规划;（7）精神。通过了解ADRD患者的护理人员如何进行自我护理，可以制定干预措施和服务，以提高护理人员的生活质量。
Individuals living with Alzheimer's disease and related dementias (ADRD) often exhibit behavioral and psychological symptoms of distress that can contribute to the strain experienced by their family caregivers. This strain can increase levels of stress for family caregivers and reduce quality of life, which can have a negative impact on physical health and wellbeing for both the caregiver and the person with ADRD. This study used blogs written by family caregivers of persons with ADRD to explore self-care strategies practiced by these caregivers. Using a qualitative thematic analysis, seven themes related to self-care approaches used by caregivers of persons with ADRD were identified: (1) health and wellness; (2) altruism and activism; (3) reminiscing and legacy building; (4) social support; (5) information exchange; (6) organization and planning; and (7) spirituality. By understanding the ways in which caregivers for someone with ADRD practice self-care, interventions and services can be developed in an effort to improve caregiver quality of life.