Social stigma for adults and children with epilepsy
Social stigma for adults and children with epilepsy
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DOI：
10.1111/j.1528-1167.2007.01391.x
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发表时间：
2007-01-01
期刊：
影响因子：
5.6
通讯作者：
Austin, Joan K.
中科院分区：
文献类型：
--
作者：
Jacoby, Ann;Austin, Joan K.
对于许多癫痫患者来说，他们的病情持续存在的社会现实是一种耻辱。癫痫污名有三个不同的层次：内在化、人际化和制度化。虽然有记录表明公众对癫痫的态度有所改善，但关于癫痫的“旧”观念的残余继续影响着流行的概念，给受影响的人造成了困难的社会环境。癫痫的诊断所引起的社会和生活质量问题可能是比其临床严重性所保证的更大的挑战。污名和生活质量受损之间的关系是有据可查的。有效地处理污名问题需要系统地处理其运作的所有三个不同层面。
For many people with epilepsy, the continuing social reality of their condition is as a stigma. Epilepsy stigma has three different levels; internalized, interpersonal, and institutional. While there have been documented improvements in public attitudes towards epilepsy, the remnants of "old" ideas about epilepsy continue to inform popular concepts resulting in a difficult social environment for those affected. The social and quality of life problems arising from a diagnosis of epilepsy can represent greater challenges than are warranted by its clinical severity. The relationship between stigma and impaired quality of life is well documented. Tackling the problem of stigma effectively requires that all three of different levels at which it operates are systematically addressed.