"Ur skin is the thing that everyone sees and you cant change it!": exploring the appearance-related concerns of young people with psoriasis.

"Ur skin is the thing that everyone sees and you cant change it!": exploring the appearance-related concerns of young people with psoriasis.
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DOI:
10.1080/13638490701217594
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发表时间:
2007-04-01
影响因子:
1.3
通讯作者:
Morris, Marianne
Morris, Marianne
中科院分区:
医学4区
文献类型:
--
作者:
Fox, Fiona E;Rumsey, Nichola;Morris, Marianne

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目得:研究未能捕捉到患有慢性皮肤病的年轻人的定性经验,这意味着他们的心理社会需求知之甚少。使用扎根理论的方法,本研究促进了小组讨论的青少年银屑病,以迅速确定主题,他们的支持needs.METHODS:三个在线焦点小组主办的真实的时间论坛。通过牛皮癣支持组织的网站,总共招募了8名11-18岁的年轻人。焦点小组持续了平均1小时,数据进行了分析,使用扎根理论techniques.RESULTS:外观相关的关注是中央的经验,年轻人银屑病。参与者在身体、情感、动机和智力方面构建了他们的个人斗争(它和我)。当参与者认识到与银屑病同龄人见面的价值时,一种强烈的“我们”感就产生了。这使得团体指责他们的负面社会经验。讨论:研究结果进行了讨论的文学背景下,围绕青春期和外观。研究表明,青春期负面社交经历可能会对外表焦虑和总体自尊产生长期影响。同行的支持,以改善这些成果的潜力被认为是。
PURPOSE: The failure of research to capture the qualitative experiences of young people who have chronic skin conditions means that their psychosocial needs are poorly understood. Using a grounded theory approach, this study facilitated group discussions between adolescents with psoriasis in order to rapidly identify themes about their support needs.METHODS: Three online focus groups were hosted in a real time forum. In total, 8 young people aged 11-18 years were recruited through the websites of psoriasis support organizations. Focus groups lasted an average of 1 hour and data was analysed using grounded theory techniques.RESULTS: Appearance-related concerns are central to the experiences of young people with psoriasis. Participants constructed their individual struggle (It and Me) in physical, emotional, motivational and intellectual terms. A strong sense of Us developed as participants recognized the value of meeting peers with psoriasis. This enabled groups to blame Them for their negative social experiences.DISCUSSION: The findings are discussed in the context of literature around adolescence and appearance. It is suggested that the experience of negative social encounters in adolescence may have long-term implications for appearance anxiety specifically and self-esteem generally. The potential of peer support to improve these outcomes is considered.