Minimum data elements for research reports on CFS
Minimum data elements for research reports on CFS
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DOI：
10.1016/j.bbi.2012.01.014
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发表时间：
2012-03-01
影响因子：
15.1
通讯作者：
Snell, Christopher
中科院分区：
文献类型：
--
作者：
Jason, Leonard A.;Unger, Elizabeth R.;Snell, Christopher
慢性疲劳综合征（CFS）是一种使人衰弱的疾病，在过去的十年中受到了越来越多的研究人员的关注。然而，由于采样方法描述、患者特征和临床评估等基本信息的差异，比较不同实验室收集的数据变得很困难。最近，在美国国立卫生研究院2011年的CFS知识状况会议上，CFS研究的可变性问题得到了强调，促使研究人员考虑应包括在CFS研究报告中的关键信息。为了解决这个问题，我们对所有CFS研究报告中应该包括的最小数据元素达成共识，以及目前正在特定研究中评估的额外元素，这些元素有望成为CFS亚组的重要患者描述符。这些建议旨在提高报告方法的一致性和报告结果的可解释性。遵守最低标准和提高报告一致性将有助于更好地比较已发表的CFS文章，为未来的研究提供指导，并促进产生可直接使患者受益的知识。(C) 2012爱思唯尔公司版权所有。
Chronic fatigue syndrome (CFS) is a debilitating condition that has received increasing attention from researchers in the past decade. However, it has become difficult to compare data collected in different laboratories due to the variability in basic information regarding descriptions of sampling methods, patient characteristics, and clinical assessments. The issue of variability in CFS research was recently highlighted at the NIH's 2011 State of the Knowledge of CFS meeting prompting researchers to consider the critical information that should be included in CFS research reports. To address this problem, we present our consensus on the minimum data elements that should be included in all CFS research reports, along with additional elements that are currently being evaluated in specific research studies that show promise as important patient descriptors for subgrouping of CFS. These recommendations are intended to improve the consistency of reported methods and the interpretability of reported results. Adherence to minimum standards and increased reporting consistency will allow for better comparisons among published CFS articles, provide guidance for future research and foster the generation of knowledge that can directly benefit the patient. (C) 2012 Elsevier Inc. All rights reserved.