Linking databases on perinatal health: a review of the literature and current practices in Europe.
Linking databases on perinatal health: a review of the literature and current practices in Europe.
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DOI：
10.1093/eurpub/ckv231
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发表时间：
2016-06
影响因子：
4.4
通讯作者：
Euro-Peristat Scientific Committee
中科院分区：
文献类型：
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作者：
Delnord M;Szamotulska K;Hindori-Mohangoo AD;Blondel B;Macfarlane AJ;Dattani N;Barona C;Berrut S;Zile I;Wood R;Sakkeus L;Gissler M;Zeitlin J;Euro-Peristat Scientific Committee
背景资料：围产期健康指标的国际比较由于关于怀孕、产妇和新生儿结果的数据来源的异质性而变得复杂。记录链接可以扩大可用数据项的范围，从而提高常规数据的有效性和质量。我们试图评估围产期健康研究和报告的数据常规联系的程度。研究方法：我们通过检索PubMed，基于常规数据（在不同时间间隔连续收集的数据）的链接，对2001年至2011年的围产期健康研究进行了文献的系统综述。我们还调查了欧洲健康监测专业人员关于使用国家围产期健康监测的联系。结果：516项研究符合我们的纳入标准。丹麦、芬兰、挪威和瑞典、美国和英国贡献了76%的出版物;另有29个国家至少贡献了一篇出版物。大多数研究将生命统计、医院记录、医疗出生登记和队列数据联系起来。其他资料来源是以下方面的具体登记：癌症（70）、先天性异常（56）、抗逆转录病毒疗法（19）、人口普查（19）、保健专业人员（37）、保险（22）、处方（31）和教育水平（18）。29个国家中有18个国家（62%）报告将数据与常规围产期健康监测联系起来。结论：使用联系的研究集中在少数几个国家，在欧洲没有广泛应用。更广泛地采用数据连接可以为围产期健康研究和监测带来巨大收益。
Background: International comparisons of perinatal health indicators are complicated by the heterogeneity of data sources on pregnancy, maternal and neonatal outcomes. Record linkage can extend the range of data items available and thus can improve the validity and quality of routine data. We sought to assess the extent to which data are linked routinely for perinatal health research and reporting. Methods: We conducted a systematic review of the literature by searching PubMed for perinatal health studies from 2001 to 2011 based on linkage of routine data (data collected continuously at various time intervals). We also surveyed European health monitoring professionals about use of linkage for national perinatal health surveillance. Results: 516 studies fit our inclusion criteria. Denmark, Finland, Norway and Sweden, the US and the UK contributed 76% of the publications; a further 29 countries contributed at least one publication. Most studies linked vital statistics, hospital records, medical birth registries and cohort data. Other sources were specific registers for: cancer (70), congenital anomalies (56), ART (19), census (19), health professionals (37), insurance (22) prescription (31), and level of education (18). Eighteen of 29 countries (62%) reported linking data for routine perinatal health monitoring. Conclusion: Research using linkage is concentrated in a few countries and is not widely practiced in Europe. Broader adoption of data linkage could yield substantial gains for perinatal health research and surveillance.