Trying to Feel Normal Again: Early Survivorship for Adolescent Cancer Survivors.
Trying to Feel Normal Again: Early Survivorship for Adolescent Cancer Survivors.
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尝试再次恢复正常：青少年癌症幸存者的早期生存。
DOI：
10.1097/ncc.0000000000000629
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发表时间：
2019
期刊：
影响因子：
2.6
通讯作者：
Rosenberg,AbbyR
中科院分区：
文献类型：
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作者：
Walker,AmyJ;Lewis,FrancesM;Lin,Yuting;Zahlis,Ellen;Rosenberg,AbbyR
尽管知道癌症治疗的潜在医学后果，但对于青少年在早期生存期的认知和情感框架、过程和管理知之甚少。目的：具体目的是描述青少年癌症幸存者在生存早期的担忧、感知的挑战以及处理这些问题的方法。方法对29名12-18岁的青少年幸存者进行半结构化访谈。采用扎根理论的归纳编码方法对数据进行分析。结果青少年治疗后早期生存经历分为7个领域和18个类别。这些领域包括回到学校；与父母、兄弟姐妹、朋友的关系；感受因经历而改变；以及对复发的担忧。本研究有助于我们理解幸存者与父母、兄弟姐妹、朋友的关系以及幸存者的疾病模式。未来的研究需要了解父母如何帮助青少年承担更大的照顾责任，了解朋友有癌症同伴是什么感觉，以及医疗服务提供者的哪些行为会导致幸存者后期的被遗弃感，以及更好地了解青少年幸存者的疾病和幸存者模式。
BackgroundDespite knowing the potential medical consequences of cancer treatment, little is known about how adolescents cognitively and emotionally frame, process, and manage in the early survivorship period.ObjectiveThe specific aims were to describe the worries, perceived challenges, and ways of dealing with these issues for adolescent cancer survivors in the early period of survivorship.MethodsTwenty-nine adolescent survivors (12–18 years) completed a semistructured interview. Inductive coding methods adapted from grounded theory were used to analyze the data.ResultsSeven domains and 18 categories organized the adolescent's experience with early posttreatment survivorship. The domains included getting back to school; relationships with parents, siblings, friends; feeling changed by the experience; and concerns about relapse.ConclusionsThis study contributes to our understanding of survivors' relationships with parents, siblings, and friends and survivors' models of the illness. Future studies are needed to understand how parents can help adolescents assume greater responsibility for their care, to understand what it is like for friends to have a peer with cancer and what behaviors by healthcare providers contribute to feelings of abandonment later in survivorship, and to better understand adolescent survivors' models of the illness and survivorship.