THE INFORMATION NEEDS OF WOMEN NEWLY-DIAGNOSED WITH BREAST-CANCER

THE INFORMATION NEEDS OF WOMEN NEWLY-DIAGNOSED WITH BREAST-CANCER
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DOI:
10.1046/j.1365-2648.1995.22010134.x
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发表时间:
1995-07-01
影响因子:
3.8
通讯作者:
SLOAN, JA
SLOAN, JA
中科院分区:
医学3区
文献类型:
--
作者:
LUKER, KA;BEAVER, K;SLOAN, JA

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护士可以在患者教育中发挥关键作用,包括为患者提供有用和适当的信息。 本研究不是关注护士提供教育或信息的过程,而是强调信息的内容,从患者的角度出发,询问患者自己在特定时间点认为哪些特定类型的信息是重要的。 这项研究的目的是探讨哪些特定类型的信息对新诊断出患有乳腺癌的妇女很重要;使护士和其他医疗保健专业人员能够尽可能有效地利用他们的时间,并为他们护理的个人提供高质量的服务。 乳腺癌患者(平均诊断时间为2.5周)接受了采访,并被要求比较信息项。 这些信息是成对呈现的,女性对其中一个项目表示偏好。 总共提出了36对。 该分析涉及使用瑟斯顿比例模型,该模型允许制定等级排序或信息需求概况,反映每个项目的感知重要性。 关于治愈的可能性、疾病的传播和治疗方案的信息被认为是诊断时最重要的信息。 其他信息需求,按优先次序排列,包括对家庭的风险、治疗的副作用、对家庭的影响、自我保健、对社会生活的影响和性吸引力。 编制信息需求概况时考虑到了年龄、教育水平和社会阶层的差异。 使用的配置文件作为临床参考指南,以协助护士和其他人提供有针对性的信息,个人进行了讨论。
Nurses can play a key role in patient education, including providing patients with useful and appropriate information. Rather than focusing on the process of education or information giving by nurses, this study places emphasis on the content of that information by taking the patients' perspective and asking the patients themselves what particular types of information are perceived as important at a specific point in time. The aim of the study was to explore what particular types of information were important to women newly diagnosed with breast cancer; to enable nurses and other health care professionals to utilize their time as effectively as possible and provide a high-quality service to individuals in their care. Women with breast cancer (a mean of 2.5 weeks from diagnosis) were interviewed and asked to compare items of information. The items of information were presented in pairs and the women stated a perference for one item in that pair. Thirty-six pairs were presented in total. The analysis involved the use of a Thurstone scaling model, which allowed rank orderings, or profiles of information needs, to be developed, reflecting the perceived importance of each item. Information about the likelihood of cure, the spread of the disease and treatment options were perceived as the most important items of information at the time of diagnosis. Other information needs, in order of descending priority, included information about the risk to family, side-effects of treatments, impact on family, self-care, effect on social life and sexual attractiveness. Profiles of information needs were produced to take account of differences in age, level of education and social class. The use of the profile as a clinical reference guide to assist nurses and others to provide targeted information to individuals is discussed.